My husband has chronic liver disease, cirrhosis and he's through to the next stage of assessment for a liver transplant at Leeds. Jeff seems to be at home for a maximum of 10 days between being admitted to hospital with encephalopathy, ammonia in the blood which makes him confused and dizzy. Jeff was admitted a week last Friday with the worse case every, he was very agitated and the nurses and doctors couldn't control him. We'd been to the hospital earlier on Thursday afternoon because he said he felt dizzy, and normally I tell the medical staff to put his blood sample on ice and send it to the lab immediately because if they don't do this, the signs of ammonia disappear. The doctor checked his blood, gave him some fluids then sent us home. In the early hours of Friday morning I had to ring an ambulance because Jeff was so confused, wandering around the house not knowing where he was. His ammonia levels were high and eventually they had to sedate him. Later on in the afternoon he lost a lot of blood from his back passage and they took him to theatre to have an endoscopy to see if they could find where the blood was coming from. Jeff was sent to Intensive Care, then onto HDU and now he is on a ward.
I left Jeff for 10 - 15 minutes at the most to get a cup of tea and when I returned he was on the floor looking as though he'd had a stroke. I had to shout the doctor and the crash team arrived, Jeff was sent for an emergency CT scan. That was on Friday and he seems very tired and still a bit confused. They think it was caused because he had diorrhea and his sodium levels were low.
I'm praying and hoping that he will be well enough to make the next assessment appointment on 22 February.
Has anyone else experienced problems like this?