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Blue Faery Liver Cancer

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Healthcare is messy

AndreaWilson_Founder profile image
AndreaWilson_FounderPartnerEditorCaregiver
3 Replies

Hello everyone,

This week has been a grind.

My amazing future mother-in-law, who is 90 years old, has been in the hospital. Twice! Before Monday, she had not been in a hospital since her youngest son Edward (my fiance) was born—65 years ago. While she is marveling at the new technology, she texted me about the lack of communication between providers and nurses when shifts change. She's not sleeping well due to the constant interruptions. She wondered why she had to answer the same question a dozen times per day. We're hoping she will be diagnosed correctly and treated accordingly so she can go home soon.

My father, who has lung cancer, (see previous post titled Devastated by Family Dynamics) texted me an incoherent message about being denied access to a clinical trial. Since my stepmother shut me out, I had no idea what he was talking about. Turns out, he was confused. He mistook an insurance denial for one specific test, for a clinical trial denial. (His oncologist hasn't mentioned clinical trials so I don't know where he got that idea.) I'm concerned because he has no idea what's going on other than his diagnosis. It's almost like he doesn't want to know.

Most days, I'm okay. Other days, I'm frustrated. Every day, I'm concerned though I remind myself I need to focus on what I can control.

Just some Thursday thoughts.

💙Andrea

P.S. Blue Faery will be in San Francisco Jan 21-24 and Austin Feb 20-22. Let us know if you're in those areas! 😊

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DancingEyes63 profile image
DancingEyes63ModeratorCaregiver

So sorry that your future mother-in-law is having to deal with that. Hopefully they figure out the problem and and can leave the hospital quickly. I'm still praying for your father and that whole situation. I'll add this sweet lady too. Some nurses are wonderful with older patients and some tend to act like they can't understand anything so they don't tell them anything. Our wonderful healthcare system. I love you and hope y'all had a nice Christmas and New Year's. I've been sick since Christmas Eve. First with a stomach bug and now with what started out with my sinuses and has evolved to an ear infection and now coughing like crazy. LOL.

AndreaWilson_Founder profile image
AndreaWilson_FounderPartnerEditorCaregiver in reply toDancingEyes63

Feel better soon. I, too, am still dealing with an off/on sinus infection since July. It's maddening. XoXo

DancingEyes63 profile image
DancingEyes63ModeratorCaregiver in reply toAndreaWilson_Founder

Hopefully we'll both feel better soon. So tired of this already. Love you. ❤️

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