Hi everyone I’m learning to know what I can and can’t do Yesterday I did my first walk down the corridor pushing a wheelchair for support then I went to the loo then the nurse said I should walk back unaided and she would follow me with the chair which I did . I felt very nervous about doing it unaided but did it anyway I was walking like a 95 year old very dodery very slow and a little hunched over but I did it and you realise that’s all that matters. I’m in a room with my new best buddy Sam ( Samantha ) who went through the same operation on the Monday but had to go back into theatre on the Tuesday straight from recovery as all here vitals crashed but they sorted her out and she ended up in HDU on the Wednesday the day before me . She’s only in her early 30s and she had to be connected to a pacing machine as her own internal pacing system on her heart hadn’t kicked back in after the operation . This is very common and everyone is automatically fitted with pacing wires just in case this happens . I had pacing wires fitted but they were never needed as my own pacing system kicked back in straight away. You will see or be one of loads of people walking round with little transformers this is precautionary and is only giving the body time to kick things back in so don’t be alarmed if you are one of these. I’ve completely gone off my food I think I’m hungry and then it arrives and a couple of mouthfuls in you don’t want it both me and Sam are the same I think we will feel better when we’ve opened our bowels which hasn’t happened yet we both have bad wind and really have to laugh and joke about it to stop it being embarrassing. Privacy is limited and you hear everything the doctors and nurses say about the other person in the room and therefore they hear everything that is being said about you. We do a lot of talking helping and supporting each other’s setbacks mine has been low blood pressure and Sam”s has been her internal pacing system we have said we are so close we are like a married couple “without the benefits” and do you know what I couldn’t have wished to share this journey with anyone more sweet and caring . We are both on Oxicodon for the pain which is an opiate and it works immediately there’s a rush to the head followed by a calmness but also you can have ilusinations which we’ve both had. My first one was I thought I was laid on by back lawn in the sunshine and one of my dogs was licking my neck and I was dozing but then I woke up and turned around and it was the nurse taking some blood from my neck which shocked me. I told both my nurse and Sam and we all had a good laugh. So don’t be worried about illusinating it will happen and concern you but remember you using very strong painkillers to get you through.. had my first bowel movement today and wanted to celebrate the fact but I decided to ignore it as I knew Sam was getting very anxious about her laxatives not working so me and the nurse kept it to ourselves. Your probably sat there thinking why would you want to celebrate that anyway believe me after not pooing for 5 days you do.
I’ve just been told ( Sunday lunchtime ) I’ve been discharged from HDU but as yet there are no beds available so I’ll stay on HDU for now which I’m really pleased with as it feels like I’m also on Sam’s journey as well as my own . Unfortunately Sam’s internal pacing system hasn’t kicked back in and it’s looking more like she will have to have a permanent pacemaker fitted to keep her heart working which is fissapointing to say the least and very frustrating for her being so young. There have been lots of tears from both of us mainly Sam I’m just hoping and praying it changes soon as they only usually give it a week to 10 days to rectify itself. I had my first visitors from back in Yorkshire on Sunday my Sister and my Sister-in-law it was so great to see them and even though I had wires and tubes all over they needed to see I was doing ok.
It’s now 12pm on Monday 10th September and they’ve got me a bed back on doulton ward so I’m going there it’s quite an emotional wrench as Sam and I have created a very strong bond and I’ll miss this greatly. So I’m back in a four bed bay all men, one guy like me has had his operation and then just has a pacemaker fitted as his heart didn’t regain its own system back he’s been in hospital for about a month then two other guys who have just been checked in for thier ops tomorrow I’ve just been told I’m being discharged from hospital on Wednesday to go to my convalescent Home on the south coast ( Rustington ) to carry on my recouperation I’ve been in hospital for one week exactly but it seems a lot longer. I’ve met some nice people made some new friends and been given a first class Service . The nursing staff throughout have been amazing the quality of care has been outstanding I cannot fault my surgeons work all I need to get is the result of the biopsy they took from a growth on my thymus gland which is directly under your breast bone that’s not available yet probably not till next week I just want to hear the words “ Non Malgnent “
I’m signing out now wishing everyone of you hearties out there lots of love and digital hugs I hope me explaining my journey is in some way helping others to understand what theirs might be like