I'm sorry to hear some of you are so young (I'm now 55) however it looks like some of you are getting diagnosed quicker than some of us older ones.
As pointed out quite correctly by the Behcets Syndrome Society any advice on this website should be first of all run past your GP or treating specialist. However I'm finding the comments invaluable - either to know that we are not alone, are on the right track or fresh ideas out there.
Now, my bit of advice (from an older person) - over the years I've had to make a couple of career changes that I hadn't really intended, however looking back I'm quite happy I did.
I'm now a trainer - teaching business administration courses via correspondence. You might like to look into how you can keep earning a living and doing the kind of jobs you enjoy that doesn't take all of your energy. (Might mean doing a couple of courses).
Because I don't fit into a neat category I haven't been able to get disability benefits (yet) although I did get the disabled parking sticker (worth it's weight in gold).
I'm lucky enough to be working from home and can work around appointments and bad days (as well as helping out looking after aged parents). We 'joke' about it and say it's quite sad that my 76 year old Mum looks after me more than me helping out.
Hope that helps - anyone with ideas on how to keep earning a living?