Hey all, I'm desperate for some advice about Behcet's.
To run you through my story in brief.
Diagnosed with Pars Planitis/Intermediate Uveitis in my right eye aged 12, deemed idiopathic. Fast forward 12 years, I'm now 24 and suffer in both eyes.
Since April this year I've been suffering from numerous debilitating systemic symptoms. They include, extreme fatigue, weakness all over. Excruciating stomach pain and cramps, painful spots which for on the upper part of my body. I constantly look pale, washes out and ill.
I also suffer with recurrent oral ulcers but I don't present with any genital ulcers, whatsoever. My Opthamologist has hinted at Behcet's being a possible and probable cause for my problems as mostly all other things have been ruled out. I will run you quickly through various tests I have had done.
CBC normal (always has been)
ESR within normal range (Never above 20) CRP <5 did reach 13 in May but went down to 8 and then lower shortly after.
HLA-B27 gene negative.
MRI brain scan normal.
Bone scan normal.
I've not yet had the HLA-B51 gene looked at yet.
Having an abdominal MRI with dye in 2 weeks time to take a closer look at my small intestine, bowels and pelvis area.
If anyone could get back to me I'd appreciate it so much.
I'm only 24 years old, I'm suffering every day with symptoms which leave me bedridden. I'm fearful of the worse, that being death from an underlying autoimmune disease such as Behcet's being left untreated. I'm getting worse every day. I usually feel like this (symptoms wise) for 3-4 weeks at a time before improving and then relapsing again 1 month later.
Thanks for your time.