Hi everyone,
I have researched and researched this disease. What I have found is that it mainly affects people of Mediterranean descent or Asian descent and I am neither that I know of. I am African-American, Native American and white and I was wondering if there are any more African Americans in this group with Behcet's syndrome?
Rooki
ncbi.nlm.nih.gov/pubmed/119...
Hi Rooki, the link above will help you further to understand this disease, true, that my Son has it, Neuro Behcets, the most serious dangerous kind as mentioned in this article, he has brainstem/pons with pontine encephlitis, my unlucky son had childhood kawasaki disease (of asian children predominat) and now he has B.D. of Asian predominat...but the population pattern mentioned in this artilce is also interesting, I have written to this doctor, but have not had any response...I think if you wish you should write to her, she would be helpful....thank you for your post, and wish you well, and please be safe, from what I understand in this article, I think it is imperative that you get Neurology/MRI check up...it was too later for my son....best for you, Ashveer and his loving mother here...genetically, we are from North India, so no surprise here, I guess it depends how the population spread from silk road route to outskirts - we sent our son's blood work to National Institute of Health, as they found his vasculitis to be unique - I wrote to them online after reading many articles like you online, and to my surprise, they wanted to see my son's blood work, and I think you could try NIH.Com, or do a expensive Whole Exon Sequencing WES Genetic Test (must through your doctor), that will tell you about your genetics and disease activity, as for my son, they are still studying his disease, and I don't know what they will tell me as it is for research, hopefully they will tell me something in the next few months...
Thanks for the link. Have a great day.
Rooki