I was refered to Rheumatology for an autoimmune /autoinflammatory condition.
My sypmtoms are as follows; joint pain and swelling, severe fatigue, abdominal pain, breathlessness, pluretic type pain, tingling and numbness (mainly hands and feet), cold/blue feet, nasal and oral ulcers, vaginal ulcers, ovarian cysts, migranines, photosensitivity, nausea........
I had an incident 2 1/2 years ago where i was in hospital with severe abdo pain for 2 weeks, all tests came back normal, eventualy taken to theratre for exploratory surgery and found imflamation / infection in abdominal cavity (even though all blood tests and swabs had been negative and I had been on IV antibiotics for 2 weeks). I also have symptoms of UTI's and PID but all tests come back negative and antibiotics make no difference.
GP had done numerous blood tests looking for signs of imflamation but always negative. because of this the GP's referal was sugesting they look for a possible seronegative diagnosis
I had second appointment with Rhuemy on wednesday. as all blood tests where negative he says he can not treat me. I mentioned seronegative and said I havnt even had all the tests hes asked for yet (nerve test, echo, abdo ultrasound, lung function), but just kept on saying that the bloods are negative and i didnt have lupus.
after first appointment he put me on 10mg prednisolne per day. This helped with fatigue and joint pain, but im not allowed it anymore coz blood tests are negative. I have been in severe pain and suffered with crippling fatigue for years, and just when I thought I was finaly being treated with something that was helping, it gets taken away coz bloods where neg!
I didnt go to see him to see if I had lupus, I went to find out what was wrong with me! how can he make a diagnosis when I havnt even had the majority of the tests he ordered????
Sorry for rant....... the main reason for posting this is to ask if behcet's was diagnosed purley using blood results. I've looked on the internet, and cant find much about it. He mentioned Behcets at first consultation, along with other things like raynauds, scholoderma, sjorgens...... but then at second appointment just kept taking about me not having lupus and no mention of the posibility of me having anything else (he said he will treat raynauds in winter).