First time posting but I was hoping to get some thoughts from those that have been suffering from this terrible illness for awhile. I am currently in medical school and am studying for one of the biggest exams we have, i.e lots of stress going on. Anyways, a week ago, I noticed I had a canker sore in my mouth that quickly grew to become bigger and more painful than any I had ever had before. Then multiple smaller sores started breaking out until I had about 5 of them.
About a day later, I started having a sore area on my vulva that was at first just painful with nothing there and then grew to become an ulcer with a white coating. I then noticed I had another huge spot and then 2 more tiny spots that also looked like ulcers. These continued to grow and become more painful so I ended up going to a physician(one I have never seen before, I was trying to establish a new primary care doctor). She took a look at my mouth and my vagina and said she thought it was Behcets. She said that she's had 3 other patients with it and it looks exactly the same. She didn't do any STD cultures or a speculum exam. I am married and neither of us felt like it was an STD or that it looked like herpes. She then told me that there was no cure, that topical steroids are used on the ulcers to control pain and sometimes oral steroids. So she prescribed me topical hydro cortisone and sent me on my way.
So of course I go home and do a bunch of reading on this disease and come to find out it's a lot more serious than just a bunch of painful ulcers. By the next day, I am feeling 10x worse. The ulcers have now lost the membranous covering and urinating is excruciating. I decide to go to an urgent care because I was frustrated with the physician I saw the prior day for not giving me more info on the disease or giving me any plan moving forward. I told the urgent care that it was possibly Behcet's and they went ahead and did a herpes culture just to rule it out. The practitioner said though that she had seen a lot of herpes and the ulcers from herpes are never as large or deep as mine are. So she gave me pain medication and a course of oral prednisone and recommended I follow up with my primary care.
The next day, I followed up with a new doctor who said she didn't have any experience with Behcet's but that it sounded pretty definite with my mouth/vaginal ulcers. She gave me a referral to follow up with a rheumatologist and an ophthalmologist. She also wants me to start on Colchicine to hopefully prevent any recurrences.
I guess my questions are is this a little premature? I'm worried about starting Colchicine because if the diagnosis of Behcets is based on having recurrences, and this medication blocks recurrences, how will I know if I actually have the disease? Her reasoning was that it is a good safety plan so I can study and get through this test without having to worry about getting ulcers. Which of course I want, but at the same time I would hate to take extraneous medications for a disease that I may not even have. What are y'alls thoughts?? Did your physician's wait till you had multiple episodes to treat??
Also I am so sorry this is so long, just trying to get all the details. Thank you for reading.