Hi all, if anyone could help it would be really appreciated.
Currently undergoing tests as rheumatologist is querying Behcet's. I have a complicated medical history,just to add another ailment, many symptoms are now pointing towards Behcet's. I have extensive DVT and occlusions which I'm on lifelong anticoagulants for, headaches, migraines, small pus filled pimple/spots on legs, and painful swollen knee joints are a few more of the Behcet's related symptoms. I have had 2 "flares" of mouth ulcers, one of which lasted almost 4 months, they were constantly appearing and fading, only to be replaced by new ulcers. These ulcers were on the wall/ sides of mouth and also my tongue had a lot of ulcers/sores, at one point was causing so much pain that it was hard to eat, I lost 10lbs in 2 weeks. The second flare started last week and the mouth ulcers are getting worse by the day.
However at the appointment I was told quite bluntly that tongue ulcers were not a symptom that contributes towards a Behcet's diagnosis. Is this true? as from what I have read whilst researching it has stated that tongue ulcers are mouth ulcers and therefore a symptom of Behcet's.
It's confusing me as I don't know what is correct,
I think surely a Rheumatologist that is aware of Behcet's would know if tongue ulcers were a symptom, but many other sources say the opposite!
Sorry to have gone on a little too much, but if anyone could help or advise me either way it would be greatly appreciated.