I apologize for the weird headline.
Reason I am asking is:
I am in a situation opposite from a lot of people here. I am diagnosed with Behcets, but I am sceptic if what I am really experiencing at my genital areas are in fact (at least sometimes) caused by Herpes.
It seems as if I have all symptoms 'to ask for', in order to fit into the various checklists for a Behcets diagnose. I just feel as if I would be more sure, if what I experience both in my mouth and genitals looked a bit more like 'ulcers', than they do.
That is why my former post was about where to share and discuss photos.
The background for my diagnosis is about 20 years with what I thought was genital herpes. I was treated for years by a confused dermatologist, because my outbreaks did not blister and could not heal without leaving scars (granuloma).
My dermathologist is perhaps the person in Denmark, that has the greatest experience in the matter of Herpes.
After I got Uveitis and was tested positive for HLAB27, doctors started looking for autoimmune diseases, and suddenly I fitted into the Behcets scheme, as I have also been struggling with joint and spine problems for 30 years.
What is really confusing is, that I actually had Herpes HSV2 DNA found in a biopsy in 2010.
Now I realized, that I might actually have two types of outbreaks on the shaft of my penis. One that is one or two small bumps/granuloma/inflamation that only disappears with an injection of cortisone, and another type, that looks more like herpes and also gives me fever, swollen lymphs, night sweat etc..
I know it sounds confusing. But I would love to hear from anyone with opinions/experience on this matter.
How much can Behcets mimmic herpes, and how common is it?
I am caucasion by the way. Tested negative for HLAB51. My dermatologist just told me, that many rheumatologists in Scandinavia are not sein Behcets as something that I can even have, and that they are wrong..
I do not mind sharing photos, but I do not want to upset anyone. I mean.. It is my private parts.
Thanks and best of luck to everyone here!