As we all have so many questions and thoughts about the Centres of Excellence I thought it might be a good idea to have everything written down in one place. I chose the blogs rather than the questions because we can upload files to this area.
I'll start off - I'm investigating referral to one of the centres because I so want some sort of overview on my situation, as well as some fresh and knowledgeable thinking applied to my medications.
I live in deepest darkest North Devon and, although it's one of the furthest away, I think the easiest centre for me to access would be Brum, which I can get to in 3 to 4 hours.
Ah! But there's the problem! I have just moved from my previous consultant at Bristol's Frenchay hospital - where I was very happy with my care - because the travelling (about 2.5 hours each way) always resulted in a bad week spent mostly in bed. How the hell then can I hope to go to Brum. I suppose I could stay over but - well, we're not that flush financially.
What's everybody else doing and what are your thoughts? Will the protocols and guidelines from the Centres of Excellence eventually disseminate to other hospitals do you think?