I was diagnosed with Neuro-Beçhets last October after several years of misdiagnosis of ME, then MS, before finally the Beçhets.
I got brought into the Royal Free last week (still here) with what they think May be a type of meningitis. I had the sensation of a stiff neck, hated any lights, vomiting, very bad headache among other symptoms. One of these was severe chest pain.
They did a lumbar puncture after 4 days of me being on IV Antibiotics and Antivirals, and told me the fluid only contained a couple of white cells.
Today I had an echocardiogram which came back ok.
So I guess I have a few questions for fellow BD sufferers, or anyone who may know:
1) Has anyone else on here had a type of meningitis? How was it diagnosed?
2) Was it related to your Beçhets, or was it from being on immunosuppressants?
3) Would a spinal fluid come back pretty much clear after just a few days of antibiotic and antiviral treatments? Would it come back clear anyway?
4) Does anyone else here suffer with bouts of severe crushing chest pain? If so, how do you cope with it? Have you had any answers as to what is causing it?
Just curious really. It's nice to feel less alone with these things!