Bear with me, I will get to the point after some background - please bear in mind I really struggle at doctors and get tongue tied & nervous - perhaps not getting my point across clearly and have a major fear of being labelled a hypochondriac!
About 2 years ago I was diagnosed with Ulcerative Colitis (Proctitis) - My symptoms at the beginning were urgency & bleeding and was historically proved. About the same time strong joint pain in ankles, wrists & knees followed. I also have almost permanent pain in my left eye and the size of the pupil is often smaller than the right one. Opticians found a different pressure between the two and I was referred to hospital. 3 weeks before eye appoint the doctor had me on steroids for a worsening UP flare so by the time the hospital looked at my eye it was at the time much improved. I was given the all clear and discharged with out follow up. It has since gone back to how it was ......
I also had a few of episodes of mouth ulcers and tongue sores - of which I was prescribed vitamin B strong compound.
I have a left sided abdominal pain 24/7 for 2 years that never waivers.
For the last year - I have had 6 episodes of ulcers down below which is what has led me to this site. In my head, I kind of joined some dots and thought possible bechets - went back to doctors and finally plucked up courage to mention them and hoped a light bulb might go off. Unfortunately that didn't happen and he mentioned herpes, I have a terrible doctor phobia at the best of times and instead of saying - could it be Behcets, I flushed scarlet, broke out in a sweat and mumbled something about my husband being to shy to be unfaithful (we have been together 21 yrs and faithful).
My trouble is that gastonologists at hospital and doctors at surgery tell me that because my colitis is low down the colon, I should not be having the additional symptoms I have but are unwilling to offer proper explanations. Instead my 24/7 left sided pain continuous for 2 years is IBS. My joint pain could be early onset of arthiritis, my eye pain and pupil problem could be colitis or strain, my mouth ulcers could be run down or perhaps colitis & my lower vaginal ulcers now could be herpes.
Thank you for taking the time to read this ramble and what do you guys think?