Experiences with

Tasigna

Hello dear, I read that a few years ago there was conducted a medical study regarding Tasigna nilotinib and hereditary ataxia. I have heard many positive experiences from people with hereditary ataxia who have used the medication. I myself have Friedreich ataxia.

I'm withholding one very important positive experience I had while on TASIGNA. It is the main reason why I want to be on TASIGNA. I can't believe this could be a placebo effect.

TASIGNA has a history of sudden death due to a condition called QT PROLONGATION. The manufacturer Novartis failed to promptly disclose this. The FDA forced Novartis to put a BLACK BOX WARNING on all containers of TASIGNA sold in the USA!

Before TASIGNA there were times when I couldn't last 3 hours till my next dose. There were many times when I could skip my levodopa - I DIDN'T NEED IT!!! While on TASIGNA, I once went 15 hours between doses!! 5. When I started on TASIGNA, my dose was 300 mg levodopa every three hours.

If a vascular disconnection is responsible for Parkinson's disease why wouldn't HBOT be considered. Its plentiful and inexpensive. There are some great ideas in the trials pipeline. There's a high probability of more failures. It may be impossible to hit a Home Run. Maybe we need to hit a single or

Would hyperbaric oxygen therapy (HBOT) with Tasigna be worth a look?

Some people mentioned using the Nilotinib/Tasigna off label. Can anyone help me figure out how and where to get it cheap and safe. I like to try it. I heard it’s helpful for SCA patients. You can pm if you want to stay anonymous. Please help.

Some people mentioned using the Nilotinib/Tasigna off label. Can anyone help me figure out how and where to get it cheap and safe. I like to try it. I heard it’s helpful for SCA patients. You can pm if you want to stay anonymous. Please help.

In that email he said that he and the patients like him had had no progression for the time they have been taking Tasigna. Let's hope the results are published sooner rather than later, and the email I got was true.

You will need medical testing before you go on Tasigna and periodically as long as stay on it. TASIGNA is very expensive, $13,000 per month. TASIGNA has very tight dosing requirements it must be taken on an empty stomach. So why did I return to TASIGNA a second time? I had very good results.

My experience with this FDA Black Box medication.

Hi, I just seen a post below that was made by Andyniem 2 years ago referring to Tasigna Nilotilib potentially slow down PSP: My wife has PSP and there may not be a cure for PSP, but there is a drug that slows the progression andyniem #andyniem Does anyone have an update on this drug?

Cost of Nilotinib at Costco with a GoodRx coupon 4 dose packs (28 capsules) of Tasigna 150mg the coupon price of $13,624.19 If there were 28 days in a month, $13, 624.19 X 12 a one-year supply at 150 mg/day would cost $163,490.28 in the US If a PWP (such as myself) had a compounding pharmacy

https://youtu.be/BMFnImwuUd0

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

This study is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea

I've been taking tasigna for 11 months and the best thing about it is that I speak clearly, and my muscle consumption has been reduced and my gaps with stamina have been decreasing.

In 2017, someone posted positive results through off-lable use of Tasigna as a means of stopping PD. Request update.