Oncologist phone consultation. - Lung Conditions C...

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Oncologist phone consultation.

2greys profile image
34 Replies

I have just had the phone call. The result from the PET scan was mixed, the malignant tumour in the top left lobe remains stable, still in remission, no change.

The nodule in my top right lobe is now in question and has grown 4 mm since a CT scan in Jan. Now at 31 mm, although it is not very clear with just how active it is, so repeat PET scan within a couple of weeks is being ordered. After discussion should it prove to be malignant, then it will be possible to have further radiotherapy treatment.

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2greys profile image
2greys
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34 Replies
Oshgosh profile image
Oshgosh

I’m relieved you got the phone call.

I’m thinking of you..

sassy59 profile image
sassy59

Wishing you well 2greys. Xxx

HungryHufflepuff profile image
HungryHufflepuff

Thinking of you and wishing you all the best for the next scan.

SORRELHIPPO profile image
SORRELHIPPO

Wishing you the best, good you know what is going on.

2greys profile image
2greys in reply toSORRELHIPPO

I have been aware of a problem on the right side for a while, 9 months in fact. Covid-19 has been upsetting the apple cart, for some people the delays have had fatal consequences, my thoughts are for them and their families.

Wishing you well with this 2greys.

helenlw7 profile image
helenlw7

Hoping you get the best result with your next scan.

Jaybird19 profile image
Jaybird19

wishing youall the best.

Must have given you mixed feeling there 2G, good news on one side not so good on the other but readiness to deal with if necessary. Good luck with the next scan. 👍💪

2greys profile image
2greys in reply to

The worst part is if I do need radiotherapy again then that will destroy my immune system for 12 months, so will be at very real risk with Covid. So yes, very mixed feelings, being immune compromised will also mean a vaccine will not work either. Chemotherapy also kills the immune system. I believe immunotherapy will not affect the immune system, but it has a mixed succcess rate.

Patk1 profile image
Patk1 in reply to2greys

Hope u get gd results from nxt scan 2greys. Tests are great but worrying for you.hope you r anxiety levels arent too bad.all the very best xx

peege profile image
peege

very best wishes to you with results from the next scan 2g, I do hope all goes well. P

RoadRunner44 profile image
RoadRunner44

Just hang in there. It may not be the news you wanted but it may not be as bad as you think. You always show a strong, positive attitude 2greys and for the moment you can do no more until you get another scan. It maybe difficult, considering the past few months, but try to keep positive for you both, concentrate on keeping well and continue living each day as it comes.

Xx

2greys profile image
2greys in reply toRoadRunner44

I have little choice. I'm not going to dwell on it, do the usual with crossing any bridges as I get to them. Life is too short to waste on worry, but I also have to be realistic at the same time, a balancing act that I have been forced to get use to over the years.

RoadRunner44 profile image
RoadRunner44 in reply to2greys

You are already showing the strength of character I have come to recognise and expect.

Xx

Shortlungs profile image
Shortlungs

Good luck wishing you well take care

2greys profile image
2greys

Wow, the efficiency of having electronic access to my hospital records. I already have my followup appointment, 24/08/2020 03:20pm. 4 weeks time.

Carnival567 profile image
Carnival567

I do hope you don’t have to go through further radiotherapy. Thinking of you xx

Gingerapple profile image
Gingerapple

Good morning 2greys 🌻

We seem to have the same thing going on as far as nodules go. Mine is up 30mm now. I was called yesterday to attend Wythenshawe this morning at 10:30am at the cancer clinic, with my results. I am beginning to feel resigned now, as I don't feel well at all lately. I've never had Radiotherapy. I hope you feel well and not struggling through your day. I think of you and hope to hear that it's not active, and I keep praying that they will all disappear, for us both, no harm in positive thoughts. I send super vibes to you 2greys and wish you a warm, sunny day instead of this miserable grey rain.

🌻❤🌟

2greys profile image
2greys in reply toGingerapple

Hi Bev,

Thank you, I found Radiotherapy very good with little in the way of side effects, just some inflammation that a course of steroids dealt with and one day of fatigue. The hardest part of it was laying absolutely still on a hard table whilst you are getting "zapped". I was able to continue working whilst receiving my treatment. There are a few dangers attached , as with any major treatment, but they are minimal. For me, any surgery is totally off the table as being much too risky with being given a 60% chance of mortality, because of my comorbidities.

I so sorry you are not feeling well, worrying can do that to you. I hope that your feeling of being resigned is not due to severe depression and more of a wholesome acceptance to your situation, which will allow you to carry on with your life to the best of your capabilities. I can tell you from personal experience that having a positive attitude really does help towards the success of Radiotherapy treatment and the recovery process, as well as exercise. I am here for you, anytime, to give you help and support through this.

Johnsel profile image
Johnsel

Hope all goes well 2greys thinking of you. Carole 😘😘

Juliette011 profile image
Juliette011

Good Luck 2greys. It is good you now know where you stand. So wishing you only the very best for now and the next pet scan. Stay strong. You sound like you are really strong person. Best wishes.

Ergendl profile image
Ergendl

Hope it all goes well for you.

Hacienda profile image
Hacienda

Wishing you well 2gs. xxx C.

watergazer profile image
watergazer

A mixed bag there 2g- hope all goes well with the next scan and fingers crossed for you . x Anita

MoyB profile image
MoyB

Wishing you all the best, 2greys. xx Moy

teenieleek profile image
teenieleek

Wishing you well for the next set of results. Waiting is hard.

Cade1 profile image
Cade1

Really sorry it’s mixed news. Good luck with next scan x

Croydonia profile image
Croydonia

Best wishes for a good outcome 2greys, we’re all thinking of you

Dedalus profile image
Dedalus

Glad they staying on top of this. Good luck for your next PET scan.

katieoxo60 profile image
katieoxo60

Sorry to hear the scan is mixed news 2greys, nice to hear a reveiw will be done quickly . Fingers crossed for a good outcome even if it means further treatment. Thoughts are with you

Grandmatojack profile image
Grandmatojack

Good luck with the next scan hope it turns out ok.

Izb1 profile image
Izb1

What a mixed bag of news for you 2greys. Sending good wishes and hope that you dont have to go through the same thing again 🤞 x

Fionafish profile image
Fionafish

Sorry to hear about the new growth - thinking of you and wishing your well x

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