I'm new here and wondered if anyone can offer some thoughts or suggestions as I'm finding I have increasing joint and muscle pain. I'm not sure where to start with my post as I have a mixed bag of symptoms some of which I know (and suspect) are complications of me having Inflammatory Bowel Disease.
Trying to cut a long story short I'm 51 and have had increasing joint pain since around 2009. I noticed it in my knees mainly and as I'd had a fall whilst putting something in my car caused by an uneven path I put it down to that and foolishly didn't get it documented by my gp despite being in pain and having bruising to both knees. I'd also had painful knee/s in late childhood and was given a warming cream to rub in by the gp. As the yrs went by in my 20's I had several episodes of severe pain in my elbows if I "overdid" things such as cleaning/washing the car or painting the house...as I was starting nurse training I didn't mention it.
In the last few yrs my joint pain has become lot worse and is now widespread and is making everyday things a struggle. I am really struggling with leg pain in both legs & knees and have had a painful shoulder for almost a year unbelievably I have had so many other things to get sorted out as my Crohn's and other abdominal problems have caused chronic anaemia, low b12 folate deficiency and low vit D. I can no longer take oral supplements or vitamins (used to take cod liver oil liquid) as they all give me dreadful diarrhoea and pain. I have iron infusions at the hospital day unit and in May I had a vitamin D injection, unfortunately the level only came up to 15 from 10 after the injection. My IBD nurse is currently reviewing my blood tests with regards to arranging another vit d injection for me.
My mum has had osteo arthritis since her middle twenties and we both seem to have pain with changes in weather. I saw my gp a couple of months ago who did some blood tests but as they came back normal he thinks the joint and muscle pain is caused/related to the Crohn's. I'm taking daily cocodamol and most days tramadol either for abdominal pain or joint pain. I am constantly exhausted and have great difficulty concentrating I used to havr a very good memory but not now.
I have an appointment with my ibd nurse in a couple of wks and am planning on going to the walk-in physio before I see her as my shoulder is very painful and I am really struggling to wash and dress and can't sleep very well. I did have a gp appointment for it but gave the appointment to my mum as she was in a lot of pain with her shoulder too...we both seem to have got worse during the heatwave and since the colder weather has started.
So sorry for such a long post...feel like there is so much to sort out that is ongoing and feel stressed as mum has poor vision and didn't get good news today she has to go to the hospital urgently so I need to get myself sorted as much as possible to be there for her as I'm her carer but I am really struggling with pain and fatigue. Wondering if I should get a referral to Rheumatologist but gp didn't think so when I asked a few months ago he thinks further vit D injection will help the pain. I also am very stiff when I get up out of a chair or out of bed I try to mobilise as much as possible but my legs or back hurt so much I have to keep stopping to rest...thats just walking about the house or upstairs.
Edit as forgot to mention I had xrays in 2012/13 that showed arthritis in both knees I think mild to moderate but don't have a copy of the report. I also had tendonitis plus possible frozen shoulder in 2011, it came on suddenly after I'd painted a ceiling and needed a cortisone injection and physiotherapy for several months. I've also had 2 episodes of extremely painful rib pain lasting about 3-4 weeks. I mentioned it to my gp but it was at the end of an appointment for my Crohn's which had been flaring so had to take priority so there wasn't much time left to discuss it and it had resolved by the time I could get to the gp so a bit tricky to expect a diagnosis then. From my nursing knowledge I think it may have been costocondritis.
I also have had my periods stopped for prolonged times to treat severe endometriosis and take steroids for my Crohn's flareups so I am bit worried about osteoporosis too...must sound like I'm falling apart lol...
I cannot believe how long this is thanks if read this far...
Any advice very gratefully received.
Many thanks in advance.