I know I asked something kinda similar but... - Anxiety Support

Anxiety Support

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I know I asked something kinda similar but read this, it's written more clear....

Armyguy profile image
21 Replies

Before you read, I posted this in an arrythimia forum for help, didn't really get a response so I'm showing you all this in hopes maybe you all expirence this too and can give me insight or if this is even anxiety, I'm doubting it a lot because I am not anxious when it happens, I know if my anxiety is up, and it's not when this occurs, another piece of proof is the fact my pulse is low lying down and Standing up sky rockets.... Anyways here it is.....

So first and foremost I'm Josh, I am a 31 year old male, I do have anxiety (lately starting to question this)

Now please don't be bias about the anxiety, I'm just trying to be open and honest and I have a bad feeling many rush to anxiety as the answer when it's there.

My issue

I notice that during the day, same time daily, 4:30 pm to 7:30 pm my heart when I stand up starts racing to 120 bpm right when I stand. When I lay down it goes down to the 80s. This is only during the evening during them hours..... When I go to bed at night, 9:30 pm I notice that my pulse dips down to the upper 50s when I'm about to fall completely asleep or really relaxed, my question is,

One is this normal? I have had echo back in March on my heart and it was clear, isotope stress test came back clear, 5 ekgs, all clear, heart monitor showed a few pvcs (anxiety related) but clear, I quit smoking over 4 weeks ago...... Cold Turkey.....

Also when I noticed this starting up, I noticed that My BP went from 130s-120s over 80s every day all day to flucuating all day. Standing it can be 120s over 80s sitting 108 to 120 over 70s and lying down 95-105 over 60s and 50s...... Just alarms me is all that it went from steady to all over the place.

Biggest concern I have is that pulse of 120 standing, every day at the same time and I didn't do anything to raise it, usually I'm lying down or sitting reading and I'll just feel it spike so I check and it's that high, wish I could do a video of it. I know it sounds like pots but I'm just worried it's something else more serious and every doc that I've seen has said it's just anxiety..... Problem with that, I'm not anxious when it happens, I get anxious after because I don't understand why Its doing it.

Anyways thanks you all.

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Armyguy profile image
Armyguy
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21 Replies
Agora1 profile image
Agora1

Hi Josh, I might have asked you before if you have ever been checked for Dysautonomia. I was diagnosed with Mitral Valve Prolapse first and then the anxiety came along. I did not understand why I was feeling so bad and like you, that caused anxiety to take over. It is a hereditary disorder not really a disease but more of an anomaly. There are some patients who display symptoms while in different positions that's where dysautonomia comes into play. It would be worth having checked out. It's done by a tilting table test where you are strapped in and tilted to see if any symptoms come on while in different positions. Other than that, like you, I don't see the b/p changes coming from just anxiety either. I truly hope you get this figured out. Maybe by going to a hospital that specializes in MVP and Dysautonomia you could get some answers. It is life changing to go through this everyday.

Take care.

Armyguy profile image
Armyguy in reply toAgora1

Thanks and yes you did but I kinda dismissed it because I didn't have the low BP associated with it. I am kinda getting sick of the doctors at the VA, I finally said to hell with Veterans and went to a private hospital and the doc there said something just sounds off from all of this, he said it doesn't meet typical anxiety or panic disorder, he thinks whatever it is, is causing the anxiety and panic disorder, cardiology from university of cincinnati is sending me a 30 day event monitor and hopefully that will show them what I'm talking about. Its aggravating and I hate constantly posting about it but it's bothering me pretty bad now. Just feels better talking about it and thank you for trying and helping me. Just exhausted. I mean if ekg and echo show clear from march, not much could have changed in that amount of time right? I should be ok......

Agora1 profile image
Agora1 in reply toArmyguy

I'm just so sorry it's still going on but then again nothing has changed in addressing it? If it were MVP the doctors would hear the murmur. It's more to do with the b/p fluctuation. Maybe something will show on the 30day monitor that will help in getting a diagnosis other than anxiety. I really wish you well. Please don't apologize for posting, who knows Josh, you may just get someone who reads it and has been through the same thing. That's what this forum is all about support, understanding and advice. Take care. Hope you have a relaxing Thanksgiving.

91342 profile image
91342 in reply toAgora1

I also have mitral valve prolapse which is easily identified with an echo. An abnormality that is probably genetic and fairly common. I went to a hospital in Birgingham Alabama that specializes in this condition and had a series of tests

That resulted on their prescribing a calcium channel blocker to minimize

The symptoms. Dig in and stay the course until you get the medical answers that you can live with.

Bmwruss123 profile image
Bmwruss123

Hi josh, ask your doctor if you can have a tilt test that will show what is happening to your heart and blood pressure at different angles

C0br4Br0s profile image
C0br4Br0s

Hi josh, I also have this problem. My hr is usually in the 60s when Im laying down but will jump around to the 100s when I stand up. I suspect it's pots but I haven't been tested for it. The weird thing is that this pots went away for 3 days last week and then it came back after I got a mini panic attack at my friends house. After the panic attack, I felt my heart racing again and I knew the pots thing had come back. I was so happy when I didn't have it for those 3 days.

Goldfish_ profile image
Goldfish_

summary ; 2 months of anxiety, 45 posts and several doctor appointments. Everyone has stated your results are within normal limits, no one can find a physical problem.

You are working on increasing your anxiety by continuing to post on the same subject and also even making videos about it.

Cant you see you are creating your own future as a chronic anxiety person with health anxiety?

Armyguy profile image
Armyguy in reply toGoldfish_

Yea well doctors I'm seeing now disagree, a heart rate of 120 to 140 is not normal when you go from sitting to standing and aren't doing anything else, the issue is, doctors don't know what's causing it and it causes symptoms in me, dizziness, shortness of breath and head aches, that's why they're concerned. Just driving me up the wall.

91342 profile image
91342

I sympathize anxiety seems to be a catch all diagnosis after standard tests prove negative. It would be so refreshing to have a doctor simply tell a patient that

They acknowledge the symptoms but simply do not have the knowledge to

Address their suffering. In the mean time

Ask for a heart monitor that will record your heart activity 24 hours .

Kindered spirit.

irme profile image
irme

Have you checked if your adrenals are functioning as they should?

Armyguy profile image
Armyguy in reply toirme

No not yet, I did have my thyroid checked. Someone said check my cortisol levels.

irme profile image
irme in reply toArmyguy

I'd suggest you do a lab testing for 24hr urine cortisol. Morning blood tests don't show a thing.I had and still have fluctuating b/p and going from low pulse up to 125 beats and the culprit was low adrenal function caused by stress

Armyguy profile image
Armyguy in reply toirme

I am curious about this

irme profile image
irme in reply toArmyguy

You will have to insist to convince your doctor that it is not just anxiety. Actually, anxiety & panic attacks are symptoms of adrenal impaired function. Not many out there willing to diagnose adrenal insufficiency unless it comes to Addison's or Cushing's.Personally ,I have been to 29 doctors in 5 year time just to be charged for an all-in-you-head diagnosis,because the symptoms were very weird.Fortunately I was diagnosed by the 29th doctor.Good luck :)

Armyguy profile image
Armyguy in reply toirme

Adrenal fatigue basically, right?

irme profile image
irme in reply toArmyguy

Basically yes. Conventional medicine doesn't recognize it as a medical condition. It can be debilitating though and it can trigger/cause many unpleasant conditions that conventional medicine does recognize. But who wants that..In my case adrenal fatigue advanced to insufficiency.

Goldfish_ profile image
Goldfish_

Well if you really want to go for it (Phaeochromocytoma) then you will need to check a 24 hour urine for catecholamines . It's pretty rare and you would usually have episodes with very high blood pressure (over 200)

Armyguy profile image
Armyguy in reply toGoldfish_

Funny you say that because a few weeks ago I was hitting 229 over 106 and 238 over 110, would not hang there but would spike during attacks.

Armyguy profile image
Armyguy in reply toArmyguy

Adrenal fatigue is another one I heard to look for.

Goldfish_ profile image
Goldfish_ in reply toArmyguy

OK then so you need to see your doctor to request these tests

Armyguy profile image
Armyguy in reply toGoldfish_

I will. I called and left a voice mail to my doctor about it.

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