Hi, Hello, Good Evening

[ChandlerRamsey]

Hi,

I am new to this website and new to sharing my feelings with anyone. I’ve kept it inside for a very long time. I’m trying to be more expressive and I give most of my family and friends credit that they have been incredibly supportive and want to help me in any way they can. But, they’ve never been diagnosed with this disease and don’t fully understand what it means and how it feels. Especially when loneliness seems to be a driving force. My hope for joining this site is to just have someone to talk to or identify with this. There is a movie from my childhood with a line that says “I’m alone but I ain’t lonely” and as an adult, I feel the opposite. I’m never alone, but I am always lonely.

Thanks in advance.

Penny

[HipHopHead]

Welcome. I’m new here too. I completely understand what you mean by feeling lonely even when you’re not alone. It’s a strange and isolating feeling. I’m happy you have family and friends to support you even if they don’t know exactly what you’re going through. Hopefully connecting with people here who can relate will help you feel better.

[ChandlerRamsey in reply to HipHopHead]

Thank you, HipHopHead for the response and the camaraderie. It’s nice meeting other people on here who feel similarly to me. I hope to continue connecting with you. I hope we can all help each other.

[Dolphin14 in reply to HipHopHead]

This place is quite unique, We are all so lucky we found it

🐬

[AnxiousSilver]

Welcome.

[ChandlerRamsey in reply to AnxiousSilver]

Thank you, AnxiousSilver

[Dolphin14]

Penny

It's very common with our diagnosis to feel this way.

I hope you find the support you need here. The community is wonderful

🐬

[ChandlerRamsey in reply to Dolphin14]

Hi Dolphin14, thank you for your kind words and for responding not once but twice. I really appreciate it, honestly. And I also appreciate your understanding of how it feels and the assurance that it’s normal. It’s lonely as it is, but feeling like this makes it extra lonely, and somehow knowing other people feel the same, makes it slightly better. Thank you again.