Misdiagnosed with ALS: Last year, I was... - Anxiety and Depre...

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Misdiagnosed with ALS

5 Replies

Last year, I was diagnosed with ALS. I went to Mayo for a second opinion and it was determined I do not have ALS. The doctor stated I have tremors from anxiety and possible drug prescriptions. I followed up with my doctor upon my return home and we do not feel it is prescription related. I am now in therapy. I would love to learn of other ways on how to deal with anxiety.

I wake up some morning already having tremors. My life is stable with no financial worries. I do know that my husband does cause some of my stress, as we own two local businesses in our local town. We have three children - 2 adults and one 16yr. old. We are almost empty nesters.

I just thought reaching out to others who have anxiety issues might offer a different view on handling the everyday life.

5 Replies
LilyAnnepuppy profile image
LilyAnnepuppy

Welcome to the community. I’m sorry you’re suffering from anxiety and depression. I am too. But I’m glad your ALS diagnosis was reversed.

It sounds like you’re taking the right actions. With meds and therapy. I supplement that with a group of supportive people, prayer and meditation. I believe it would be better if I added exercise in the mix, but haven’t been able too. Yet.

I get tremors occasionally, but my psychiatrist thinks it’s medication induced. So she’s weaning me off of one of my drugs. I’m hoping I’ll be okay without it.

Wishing the best for you.

in reply to LilyAnnepuppy

I have taken the same medication for years. Yes, I have increased the dose but not by much. They are for depression and anxiety. I do have a sleeping aid if I need it. I use half the recommended dose.

I do need to keep working with my counselor. Digging deep is very hard.

LilyAnnepuppy profile image
LilyAnnepuppy in reply to

Yes. Uncovering my emotional twists takes a lot of self analyzing, working with professionals, and working on changing my irrational fears and habits.

It’s helpful to remember that I’m the one with the broken brain. I have a mental illness. And the work should come from within. I am not a victim of people, paces and events. I am in charge of my reactions. And the underlying issues that cause them.

SayNOtoPanic profile image
SayNOtoPanic

Oh man what a rollercoaster. So sorry you were misdiagnosed and so glad it has been cleared up. It’s still unfathomable to me sometimes how anxiety disorders can cause so many physical symptoms and what it puts u through cause of it. I think therapy and even meditation help a lot at least to have tools and outlets of working on it. Prayers up to you Rooster.

catsrock profile image
catsrock

I'm glad you don't have ALS, but that must have been really stressful thinking you did and getting misdiagnosed. Tapping has helped me alot. You can access free tapping meditations here: thetappingsolution.com and download their app onto your phone. I just do the free meditations as some do cost to access.

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