I am new , it has taken me some time to do this. I have a therapist, no real family. I have been in therapy for a variety of life changes.
Iam not on meds. I want to wake up and enjoy the day. I really don't know how. To keep myself productive, I am a robot, no emotion, no feeling, just keep up chores, listen and nod.
Iam nowhere
Welcome Annette.You have it tough. I don't understand what your husbad's ailment manifests itself though
he has multiple myeloma, not curable but treatable .He will have it and be on chemo for his lifetime.I want to share how we found out he had it.
He was bitten by a tick .....never felt it or saw it..nothing. He started to look so gaunt, tired and had chills. Goes to the doctor and gets tested for all the tick diseases .He had babesiosis!
He. got treated and retested after therapy. The Dr. saw some abnormal proteins and sent him to a hematologist . He had a bone biopsy, more tests and it was abnormal...possible multiple myeloma. We went to Sloan Kettering and they redid some tests and diagnosed him with multiple myeloma....it was discovered so early that he did not have any damage. Well, they treated him, he also had a Bo ne marrow transplant and now on revlimide. He will be on this, and seeing his BMT dr. for as long as he is alive or they have a cure.
Sorry this took so long , thank you for asking..really.
The upshot and weird part is that if the tick did not bite him, he would still have gotten myeloma , but may have gotten damage. We consider ourselves blessed. I love him and will do whatever it takes
this happened 4 or 5 years ago.....he is beginning to saw he needs to do more and take the load off of me. I am doing the best I can and adjusting to our "new" lives.
I thank you for asking and apologize for this being so long. I am also getting familiar with this site..i like it..like a warm blanket. Sometimes I just need a hug
bless you, with thanks annette
I am constantly on TikTok on mobile phone from AppStore or YouTube on computer just google and search for music or any topic you want to
Hi there and welcome , I'm sure you'll find lots of people to chat to on here, just join in😘
Hello friend,It’s really great step to come here, means you need to do better and you do care about yourself. That’s so brave of you and need lots of strength. I am glad you are in therapy, and hopefully things will change for the good day by day. Be kind and gentle to yourself, you are already doing a great job. Step by step, little by little
Maybe you can start by doing one thing, little thing that you love every day..
wish you gonna feel better and send you all my love
Welcome, you have alot of new friends now.
Dearest new friend, you now have a safe caring site to come to when feeling overwhelmed.Others waiting to give you that emotional hug you so need. Others who will share their
own journey as we can learn from each other.
Try focusing on the things you are grateful for each day. They are there all around you but
sometimes we tend to focus only on the negativity in our lives. No matter how small
a positive step may be, believe in that it will help.
Make sure you give yourself some "me time" every day. A relaxing bath, a meditation and
breathing, affirmations and just some alone time.
Be sure to come to this site often for that hug and understanding. You are cared about 
xx
I know just how you feel, I have many of those days. You just want to be happy and feel good. Every days a struggle for me. I feel like giving up all the time and walking away from my family because they deserve better than me. I want to get better and feel better but i dont know how to.
believe it or not....i decided to shut down for a while. this site is where I can be myself.I can say this sometimes family might not be the first best thing
hang in lefty, this site is my first step, besides therapy ..gotta start somewhere
You don’t say very much so it’s hard to give support, except words of encouragement. You say you have no family but you listen and nod. You must have friends then and that’s great. But a good conversation is like ping pong, it should be a back and forth interchange. The best thing for mental health they say is social connections and even fleeting ones are beneficial. Exercise is important too. I wish you the best.
Do you have any pets? They really do help a lot.
no pets, I am a gardener and love it. there was a wild turkey that liked my yard, he would site and I would garden..he never flinched.....crazy as it sounds he was my friend..i do better with wildlife. Don't want to deal with a pet at least not right now
You mention your husband's socks. Is he physically able to pick them up? If he can then he should, and in addition, he should do other chores that he is capable of. This would be good for both you and him. It must be very difficult to live with someone who has a terminal illness; you have also been through a very hard situation with your Mother. It sounds to me like you need a real break. I am guessing you are in the NY area if you used MSK. There are a number of assisted living facilities in the tri-state area. All of them accept people for short term stays ie. a week or two. Can you try this for your husband and then take a vacation for yourself. Time at a beach could do you a world of good.
hubby is functional and capable. I think he is frustrated and his family is not very helpful.He actually rinsed his dish out and does what he can.
I think what happened is we were in our early 60's when she moved in(I miss her so much)
we were healthy and mom was with us for 10 years before she passed and that was 3 yrs ago. We looked at each other after he was diagnosed, and realized that the healthiest, no restriction years of our lives were..poof...gone. It was an eye opener.
Just cant figure out what to do, just looking for people to talk with
