RANDOM THOUGHTS , QUESTIONS, AND A MOAN OR TWO ABOUT DOCTORS AND UNECESSARY UNKINDNESS

[sweetiepye]

Somedays I feel like I am juggling all my problems and health issues. The balls are all in the air as I am running on a treadmill . What happens if I drop them? I should drop them.

My gp told me RLS is to small a condition to use the power of opioids on. Thank goodness I have a neurologist who isn't in the dark ages. I told the ignorant one that contrary to his belief RLS is the most damaging disease I have experienced . He was taken aback. At the information shared ? No. At the mouse that roared.

When you have so many people engaging in an exchange of ideas and opinions it's hardly surprising there is rancor at times. When you add the fact that we all suffer from something it is even more surprising there isn't more of it , but of all people ,who knows better than we what a little kindness can do? That empathy is what makes us special, and because we are special HU is special.

I like the likes I get, but I love responses. I'm not saying we should respond to everything. Responding is how we get to know each other and make friends on here. When you think there are cliques and you are being excluded know that these people have taken the time to respond to each other.

Hugs to all, Pam

[LilyAnnepuppy]

It's my responsibility to advocate for my own health issues (physical and mental). Good for you sticking up for yourself with the idiot doctor.

[sweetiepye in reply to LilyAnnepuppy]

I didn't realize how many there are until I read it here. Stamp out idiot doctors !

[LilyAnnepuppy in reply to sweetiepye]

SOID

[Sillysausage234]

I like this Pam ..

[Hidden]

Pam

Restless legs, Let Us Go Dancing Lol, Sorry could not resist it

Would an EMS machine help you or even a TENS, The latter may be able to block the nerve actions in your legs while an EMS can tone up on your muscles and that may help.

There is a new machine out where you place both feet on a foot unit thing, that is supposed to tone the muscles as well.

You mention Opiates, generally not all of these types of drugs are bad however you will need to take the good with the bad, I have been on them now for thirty years and over the long term they are trying to reduce the medication. My problem is I am now an addict and it is taking time to reduce the doses. It is not pain that is causing problems it is withdrawal. With that and nerve damage in my spine, neck it is not helping my other problems like dizziness and falls.

In my case I had blood tests and they found my B12 was depleted, so they give me injections every twelve weeks. D3 is also given to tone up my body and ease pain as is the B12. They seem to be working and I now am not suffering as much pins and needles, cramp and Pins and needles.

They say here Pensioners have problems with a lack of B12 and D3, in fact the D3 Medication is a type for OAPs, I take two of them each day.

It may be an idea and approach your GP and discuss the vits above. Some vits cannot be produced by the body, B12 and D3 are two of them. I will be on these medications until I push up the daisies. The only reason I suggest this is, it would be better if you could be of opiates and only take them when the need arises, later life.

Just a suggestion

BOBxxxx

[sweetiepye in reply to Hidden]

Hello Bob, You made me laugh about my dancing legs. Opiates are a short term plan to get me off ropinirole. Once that is accomplished then I will withdraw from the opiates. It is taking months for me to find an opiate I can tolerate. Drugs are my life it seems. How is Pax? I haven't seen him mentioned lately.

[Hidden in reply to sweetiepye]

Pam

Pax is fine, He is sitting at my feet at the moment, waiting for His dinner.

I did not mean to go on about Opiates, it took them two years with me to get me on the correct pathway with my medications. I went through courses with Pain Clinic and that can bring about failures in ourselves when they show you how to manage and vary your dosage. At the moment it is a real concern and Hazel has taken up the job of reducing the dosage. I am now going through the reductions every other day on top of the reductions already made. I feel like it is a real concern.

Amytryptalene AD in small doses can help reduce Nerve Damage Pain, Tendons/ Shiefes etc, so that may help you, it does not take a high dose to suppress.

All the best

BOBxxxx

[Dolphin14]

Oh Pam

There are more idiot mds out there. I can tell you after years of dealing with them.

Best thing to do is speak up and ask questions. Some don't like that. When you get one of those you ask more questions.

As far as the community goes. It's a supportive environment but you have to take the step to interact. Participation is key.

[Hidden]

Kindness can change the whole day...

If that gp receptionist I spoke to a few days ago had been kinder to me, don’t think I would have felt as awful as I have...

I know she’s probably sick of people but 😔

Kindness is ace !

🌹🌻🌹🌻🌹🌻🌹

[Dolphin14 in reply to Hidden]

There is no place in medicine for this behavior. Kindness and compassion are what we all should get.

It's so upsetting.

[Hidden in reply to Dolphin14]

Yes I agree..

The way she was with me ruined my week..

Unkindness really affects..they say reach out and when you do 🤷‍♀️

I’m feeling a little better...at least coming here on the forum, most of us understand how it can make us feel..when we feel vulnerable ..

Thank you Dolphin 🌻🌻🌻

[Dolphin14 in reply to Hidden]

I agree life is about being kind to people.

You would think it goes with the territory in any medical profession but sadly that's not always the case.

[Hidden]

Lol at your tenacity. My new PCP (since the first of the year) after having to leave my last one cause insurance changes. I had been with him for over 20 yrs. and did not want to go. Considered paying out of pocket but on the new plan everything was free. (Social Security disabled, retired.) So I go to this new doctor and as I'm sitting there he's reading my file, for the first time. I knew I had him on my hook. Being a sociopath I was honest, for the most part, with my last PCP and he was good with me for medicine. This new one was my latest mark. He's sending me to have everything tested, at no cost. All meds, no cost. He did not want to fill my Xanax generic because it's a head med and I'd need to see a psychiatrist. BS! When my script ran out I called and told them my script was out and I needed my meds now. He filled it. This last time there was some delay; he was on vacation last week when I called in my refills. No one told me. Idiots. I complained to doctor about the lack of sufficient management within the office staff and office manager needed to tighten up. He said they have no office manager. And it shows I responded. He knows I'm not a pushover. I give him the answers I want him to write down whether or not he knows it. So I call my last PCP and he has no problems calling in a refill with refills. Either you learn how to work the system or it will work you. Best to have them in your hands. And you're on the right track. Oh, I have asked at least two medical doctors what they know about kratom. Neither had heard of it. Remarkable. For a doctor anyway.

[sweetiepye in reply to Hidden]

I know exactly what you are referring to although I don't have a term for it. I see this Doctor for two reasons … as a gp he is capable for flu or any minor illness and he is willing to refer me to any specialist. He is the type of Dr. who enjoys being a Dr. but doesn't really want the responsibility of it. I tell him just enough to get where I think I need to go. I seldom bother to say what I really think but that day I just had, had it with Drs who cause suffering through their ignorance. I once gave him a whole packet of material on RLS and he handed it back to me.I could easily go else where but haven't because of insurance . I don't want to appear to be a difficult patient. I am a difficult patient though . lol

[Sunshine425]

Just wanted to pop and say hi. ♡

I like what you said about responses. Im guilty of lacking in my responses on here the past month. I used to check in often and I enjoyed getting to know everyone. It has been hard for me to hop on here when Im not feeling good about me. I know it doesnt make much sense. This site helped me out so much and I enjoyed using it. Your post reminded me to get back on more often. So, thank you.

[Pri0606]

Hi sweetie... i hav restless legs for 3 yrs now, n no doc took it seriously.. but d fear to even go to bed n relax is frightening, coz thats wen it gets unbearable for me.. plz let me knw if something has helped u to reduce this.. love..pri..