My diagnosis of Symptomatic Carrier of ALD was discovered in 2005. I had a lot of the usual symptoms - falling, weakness, dropping things, headaches, etc. The one defining symptom for me was that I had NO pain. I was able to walk with the help of forearm crutches, still drove without hand-controls.
So - 4 months ago I fell 2x, wrenched forst and then broke bones in my left foot. Surgery repaired the breaks in December, I've just recently been given the OK to start walking again. I do have increased weakness in my legs after being in the chair for so long, no weight bearing for most of it.
What I've also started experiencing are leg cramping and tremors, actually feeling pain in my lower legs. This just hadn't been a problem before now. Doctors told me for years that the nerves were basically destroyed, I wouldn't have the pain & symptoms others had.
Has anyone else had this experience? Starting with total lack of pain & muscle involvement to having, at least, some pain and muscle cramping/tremors? It's only in my lower legs. Much more noticable tightness in the legs. It's a new ballgame for me and I'm not sure where to go with it. Wait it out for a while? I just saw my neuro in February but I should contact him, just to update status if nothing else.
I'd appreciate any & all thoughts you may have!