Hello, I wanted to ask a question about urinary urgency [I know the subject has been done to death here already]. I have a belated diagnosis of ALD [really AMN] based on raised VLCFA blood levels. I have also had a stroke [fully recovered] and other neurological damage [mystery illness that damaged muscles in right arm and leg]; more in my profile. The symptoms attributable to AMN are progressive loss of sensation in feet and legs.
I have also suffered from urinary urgency over this period, which coupled with unable to walk unaided leads to often not reaching the bathroom in time. I am not sure whether this is caused by AMN affecting the muscles controlling my bladder or some other illness. The timescale over which that this has appeared [years] argues against bladder infections, and the alternative is scary [prostate cancer]. I will raise this with my GP, but I wanted to ask if urinary urgency is common with AMN with my level of illness.
I looked into medicines to reduce urinary urgency, but they seem to have scary side-effects [oxybutynin etc]. Botox injections sound like an answer, but I have held off these for spasticity [muscle stiffness in arm] as the effects last months and are not reversible if there is a problem. Can you help? Local Drs have no experience of this rare illness.
Sorry this has been a bit long. Jack.