I have similar tightness but different: Pain wakes me from sleep - not that I have restful sleep. I believe this is the same tightness as in my waking hours: I stand too long, I get tight; I sit too long, I get tight. Therefore, if I lie down too long, tight. In sleep, I toss and turn rather actively. I have to straighten myself up slowly when I step out of bed onto the floor. Then I take a slow step or two to get circulation going. As I walk slowly to the bathroom or the kitchen to make coffee, the tightness and pain ebb away. This is not to say I can walk. That's a different matter.
I have to say I was prescribed 2mg Tizanidine for bedtime - a muscle relaxant like baclofen, but with pain relieving properties, and it has helped me to sleep and wake peacefully most days. Baclofen makes me sleep but does not help me the morning after.
I know you already take a lot of medication. I wanted to chime in to say you are not alone.
I have only recently been experiencing hand issues. I did not think that I would experience this because I had always been told that below the waist was the major impact.
I have experienced loss of sensation and have stiffness in the morning. I had a nerve conductivity test done and they found some peripheral neuropathy.
I am up to 15 mg of baclofen 3x daily but still have morning stiffness.
I have found using thin gloves at night helps keep my hands warm and reduces the stiffness.
Just completed a three hour car drive (as a passenger). Had my feet up the entire time but at the end my Achilles tendon was killing me.
I've had intermittent numbness/pain in my fingertips for years now. So much so, smartphone typing can be nigh on impossible
If I'm not concentrating, I often drop things (like my phone just now). Even something simple like drinking, I think way in advance before attempting to pick up a glass/and always reposition the glass wee inside the table.
And, as I never tire of pointing out, I've got it a lot easier than many on this board. Maybe though we all have it good/bad depending on whatever.
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