Advanced Prostate Cancer
4,814 members4,629 posts

got the big c

hello..I could not urinate..so went to dr and..surgery to remove prostate and seminal vesicles..he could not get all of it so radiation and hormone therapy for five years..had much pain on side..turned out that ca went to my spine..had surgery on spine abd radiation and hormone.. now get to see oncologist once a month for inection and infusion..also blood work monthly..much crazy pain all the time..never ends..just gets worse..pain meds don't hack it either..just amess

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PCa in its later stages is a bitch...a lot of guys wind up in hospice on a morphine drip...when my time comes I plan on wrestling Gustav..so far the Croc has killed over 300 people

i0.kym-cdn.com/photos/image...

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Are you still having your Gator Blood---I am.

Nalakrats

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right now I am doing Xtandi/Bat...1 month Xtandi on and 1 month Xtandi off....I quit taking everything else so I can judge effectivness

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Doing the old scientific method---good for you.

Nalakrats

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The croc never ceases to amaze me!

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I'm sorry to hear of your condition tlew. It might help you to find a doctor who specializes in pain management. It won't fix your cancer but it might make life a lot easier.

Best of luck.

Alan

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I’m sorry for your incredible pain.....I am just a few years behind you in treatments. Truthfully its frightening to read what might happen .. Any suggestions for me? I pray a resolution of pain for you ,and for you to find enjoyment again in living. I am pulling for you.. Hope you’ve improved. It took me a day to think what to say .. Your words hit me hard,,cried, didn’t know what to say. Please respond ? I believe that you will find help here ..

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Welcome, tlew.

So sorry to hear of your life with so much pain. Can you tell us the name of the treatments you are on now? And where/how it hurts?

Also, if we could have some idea of the area where you live, somebody here may be able to point you in the direction of local palliative pain management resources, support groups, or other support resources that may help you in your life that lies ahead.

If you are taking Opioid pain medication(s), this link discusses several ways to help keep them most effective, while also minimizing side effects. You might find some ideas to discuss with your prescribing doctor(s).

ncbi.nlm.nih.gov/pmc/articl...

Keep letting us know how you are doing. You are not alone.

Charles

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Tlew...you must have a lot of guts and fortitude. I don't know if I could withstand what you have already gone through.

Cheers for you.

AlanMeyer and Charles (above) have the right idea for you. I hope you are able to find some joy and sunshine.

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Welcome Tlew,

Elgie is on many meds for pain. He would not be able to walk if we take even one pill away. He is on Oxycodone, Cymbalta...up to 90 mg, Fentanyl...sometimes higher sometimes lower, Celebrex 200 mg I think twice a day, Turmeric..Solgar brand and Naproxen as needed every day or every other day. It takes all of those meds to get him out of bed each day. Previously they also had him on Oxycontin with all of the others and he worked off of that one. I'm so sorry for your pain. I truly am. I hope your doctors or pain specialist are able to find some type of medications to help you to not hurt so bad.

Most sincere. Healing hugs.

Jackie

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tlew,

so sorry to hear about the pain crisis and hoping you can get a good pain management specialist to assist.

I'm on the sidelines but wondering if you were ever put on Zytiga which for many guys has worked wonders for symptoms of metastatic PC.

Wishing you all the best in your fight.

Peter

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