Vitamin E for hot flashes?: My husband... - Advanced Prostate...

Advanced Prostate Cancer

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Vitamin E for hot flashes?

Helperwifey profile image
17 Replies

My husband has had 6 rounds of Taxotere and is taking Nubeqa and Orgovyx. Is it safe for him to take Vitamin E for hot flashes?

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Helperwifey profile image
Helperwifey
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17 Replies
Tall_Allen profile image
Tall_Allen

No. Vitamin E has been found to cause prostate cancer. Veozah has recently been appoved for women but works for men too. It completely eliminated hot flashes for my friend and has had no side effects.

Helperwifey profile image
Helperwifey in reply to Tall_Allen

Thank you for responding so quickly…I am SO glad I asked this question. I had NO idea about this. I take Vitamin E daily and thought it would be fine for him.

Tall_Allen profile image
Tall_Allen in reply to Helperwifey

Here's why:

jamanetwork.com/journals/ja...

It's a good idea to check with his oncologist before giving him any supplements.

LongevityAT profile image
LongevityAT

For me, Gabapentin at night stopped my nighttime hot flashes.

EdBar profile image
EdBar

No, prostate cancer loves vitamin E. I’ve used estradiol patches for nearly 10 years now and rarely suffer from hot flashes and mine used to be frequent and extreme. The patches were first prescribed to me by Snuffy Myers, he has several YouTube videos on the use of them. Check it out, they work great, help with bone strength which is affected by ADT and may even offer some benefit to prostate cancer treatment.

Ed

London441 profile image
London441

Estradiol can be great if you can get it. Gabapentin and now evidently Veozah work also.

Some like a device called the Embr Watch. I believe plenty of exercise can minimize or eliminate them. Certainly carrying extra fat can’t help. I had no hot flashes to speak of.

spencoid2 profile image
spencoid2 in reply to London441

I believe that the ember watch is a scam. I have tried everything other than gabapentin and veozah. I tolerate gaba well so would like to try it. Any suggestions on dose and timing? I have also been having daytime hot flashes that are quite severe at times but just annoying as opposed to night time ones that wake me up. I will check into veozah as well. These are listed as the most common side effects of veozah on their site, huh? Sounds like a drug to be avoided at all costs.

The most common side effects of VEOZAH include:

stomach (abdominal) pain

diarrhea

difficulty sleeping (insomnia)

back pain

hot flashes or hot flushes

London441 profile image
London441 in reply to spencoid2

Drug manufacturers tend to list many more side effects as 'common' than those that actually are. Everyone should know this from television commercials, it's been a running joke for as long as they've existed. It's all for liability purposes, try to keep it in perspective.

As for the watch, many claim it's a lifesaver, others like you don't get much from it. Have you tried it, or do you just suppose it's a scam based on its mechanism of action?

Also: Placebo effect is always just as good as the real thing.

spencoid2 profile image
spencoid2 in reply to London441

For the ember to do anything you have to turn it on when you have a hot flash. The tiny battery does not have enough energy for more than a few minutes of cooling. When you turn it on you are already awake so wtf good is it. Also the best reviews on costco say it minimizes hot flashes. Some people will say anything works if the pay enough for it. I made a device that cooled my wrist and it did nothing to stop or minimize hot flashes but i only spent $20 making it so did not need to prove to myself that it worked

London441 profile image
London441 in reply to spencoid2

Hey I probably wouldn't even try it myself. However, its effectiveness may depend not only on placebo effect, but when you use it. Some don't have flashes that wake them up.

So your claim, 'you are already awake so wtf good is it' assumes that if the watch doesn't work for those who are awakened by hot flashes then it's useless. Some probably find it very helpful during waking hours, perhaps in conjunction with a fan. I wouldn't know.

What I do know is there are some very satisfied buyers of it. There is no effective argument against that.

Keeping a good body composition (less fat, more muscle) and exercising to keep the mitochondria healthy is what I always suggest for all side effects of this disease and its treatments. There is data to back this up , but not with regard to the hot flashes. This meant nothing to me. It's the approach I took, and I had no hot flashes, nothing but occasional warm moments.

If you try the watch, gabapentin, black cohosh, acupuncture etc etc and they don't work you get nothing. If you ramp up your exercise and it doesn't work, you get a kaleidoscope of other benefits.

spencoid2 profile image
spencoid2 in reply to London441

yes maybe there are a few people who have daytime hot flashes and they are made less intense. if so they could do the same with an ice cube or a cold pack and probably do a lot better. there are cold devices that you can wear around your neck and have probably 10 to 50n times the battery capacity and cost less. i bet they would work as well or better. i just tried gaba last night and probably took it too early before bedtime because i had a hot flash early but non during the night and then one in the early morning. maybe i need to take it earlier and again when i wake up to pee. i forget how many times a day it was prescribed for but would rather not take it during the day as i can tolerate day time hot flashes.

London441 profile image
London441 in reply to spencoid2

Whatever sir. Again, if they think they’ve found the solution and are happy, it only matters to you that it’s snake oil.

The period of time I came closest to having hot flashes was in winter, and it was a reasonably cold one where I was living. I just opened a window or went for a stroll around the block in shorts and no shirt. Key for me was the warmth not only passed quickly, it was only a few times a day.

I do credit being a competitive athlete more than anything else. I never made any money at it, but it still comes in handy at times.

CarlosBrasil profile image
CarlosBrasil in reply to spencoid2

I started gabapentin 300 mg one month ago, one hour before bed time, and it cut off my nighttime hot flashes. Also reduced the intensity of it during the day.

Side effect was great for me, it put me to sleep faster.

Maxone73 profile image
Maxone73

I am worried…I am not taking vitamin E directly but I read that there’s plenty in nuts and seeds and I love them and I started eating them more than usual after I have been diagnosed (I basically became vegan apart from some fish)…apart from that I take some curcumin and ursolic acid but not the days before I have my blood tests for Psa or before chemotherapy

you never know what to believe! ncbi.nlm.nih.gov/pmc/articl...

j-o-h-n profile image
j-o-h-n

Take this, Take that, Don't take this, Don't take that, Wear this, Don't wear that, Rub this on, Rub this off............

youtube.com/watch?v=LOILZ_D...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 10/03/2023 10:58 PM DST

85745 profile image
85745

My research show most forms of vit e to be bad for PC . But there are studies that show a form of vit e known as Vit e succinate ( ves ) actually has anticancer benefits. You decide. I myself take 400mg a day with my fenben along with Tudca and lactoferrin. Many claim that Black Cocosh reduces Hot Flashes I myself don't know if it's ok for PC. Vit e link provided : pubmed.ncbi.nlm.nih.gov/125....

TuffNuttoCrack profile image
TuffNuttoCrack

suggest trying acupuncture. It may help no guarantee

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