Celebrate good (news) times, come on ... - Advanced Prostate...

Advanced Prostate Cancer

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Celebrate good (news) times, come on -Let's celebrate

Carlosbach profile image
26 Replies

Thank you, thank you, thank you;

Thanks to everyone who replied and/or messaged me in response to my recent post about the serious mental and emotional side effects I have been experiencing on Lupron and Elligard. I wrote my MO yesterday restating my concerns - and today I received a message back from the MO, “Hello Mr XXXXXXX, we will switch to Degarelix when your next injection is due…”

YEAH! Result!

Its party time here this morning. My wife even cracked open a bottle of champagne and we danced around the house for a while.

I cannot express what a relief this is. I know that it is easy to dismiss what someone else is going through, but the last two months have been the most mentally challenging of my life. All I can say is that I’ve always been a relatively stable person (some snarky folks might say dull), but I was afraid if the side effects continued to intensify after my next Elligard injection that I might have a total mental breakdown. Many times over the last 8 weeks I have felt close to snapping.

The feedback, information, and compassion you shared with me was amazing. I used much of your input to help me craft my letter to my MO, and it worked within 24 hours.

I won’t be on the forum much today, because its party time all day today.

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Carlosbach profile image
Carlosbach
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26 Replies
dockam profile image
dockam

Wonderful Brother💙👍🎊🎁

youtu.be/l9-v12HyWEA

Carlosbach profile image
Carlosbach in reply to dockam

Excellent!!!

dockam profile image
dockam in reply to Carlosbach

youtu.be/3GwjfUFyY6M

Carlosbach profile image
Carlosbach in reply to dockam

the down side is that I only have the schw, and I’m still missing the ing from my schwing

dockam profile image
dockam in reply to Carlosbach

youtu.be/4m2WutlqBk0

Carlosbach profile image
Carlosbach in reply to dockam

Me neither

Bugs Bunny
Papillon2 profile image
Papillon2

The Universe takes care of its own. Good for you!

Carlosbach profile image
Carlosbach in reply to Papillon2

thank you

PS- did you choose your handle to represent butterflies or dogs?

Papillon2 profile image
Papillon2

Oh yeah. When I post in a day or 2, I will use it. After 13 years of remission, um back in the fight.

Carlosbach profile image
Carlosbach in reply to Papillon2

Sorry to hear that your remission is pausing. I’ll look forward to your post

Carlosbach profile image
Carlosbach

I agree. The collective knowledge of this group is amazing

MMK-XFuture profile image
MMK-XFuture

Great news. Party on!

Warriorthree profile image
Warriorthree

what lovely news so pleased for you

Carlosbach profile image
Carlosbach in reply to Warriorthree

Thank you for your well wishes

Zengal79 profile image
Zengal79

I am so glad you reached out and advocated for yourself. Mental health effects of these treatments are not discussed enough. Thank you for being brave. Party on!

Carlosbach profile image
Carlosbach in reply to Zengal79

Thanks Zengal. Fortunately I still have enought mental acuity (for up to 15 minutes a day 😉) to learn something and to advocate for myself. As fortunately, there are enough experienced and caring souls on this forum who were/are willing to share their knowledge, advice, and support!

j-o-h-n profile image
j-o-h-n

I never thought you were dull..... I just knew it....................

Now get up and show us what you got.......

google.com/search?q=john+tr...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/31/2023 12:43 PM DST

Carlosbach profile image
Carlosbach in reply to j-o-h-n

Disco party at my house tonight, be there...

...or be dull

j-o-h-n profile image
j-o-h-n

Dull? I'm so dull even my butter knives are dull....Thanks for the invite but I'll be home tonight busy sharpening my butter knives.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/31/2023 2:43 PM DST

Carlosbach profile image
Carlosbach in reply to j-o-h-n

You're too sharp for me...

j-o-h-n profile image
j-o-h-n

They say "It's anyway you slice it"

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/31/2023 3:27 PM DST

cancerfox profile image
cancerfox

When I was getting Eligard shots I felt uptight all the time.....tense, nervous , and easily annoyed. I'm not sure if it was from the drug itself or because I felt so lousy all the time from its side effects. Anyway, I hope you have better results with Degarelix. Now all you have to be concerned with are possible hot flashes, weight gain, diarrhea, nausea. hyperhidrosis including night sweats, rash. gynecomastia, testicular atrophy, erectile dysfunction. Increased transaminases, musculoskeletal pain and discomfort, dizziness, headache, insomnia, chills, fever, fatigue, and flu-like illness according to the literature. Sweet!!!! 😃 🦊

j-o-h-n profile image
j-o-h-n in reply to cancerfox

and no texting while driving......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 03/31/2023 5:42 PM DST

Carlosbach profile image
Carlosbach in reply to cancerfox

You didn't have to sugar coat it Fox.

Already have all of those SE's, and was coping. But the mental health issues after this last injection made me a Danger Stranger to myself. Fingers crossed that that ship sails with the med change

chefjlu profile image
chefjlu

Communication with your team is so important. Great news and good luck!

Carlosbach profile image
Carlosbach in reply to chefjlu

Couldn't agree more

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