Decision Time is Coming: I was... - Advanced Prostate...

Advanced Prostate Cancer

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Decision Time is Coming

PabloK profile image
15 Replies

I was diagnosed in August 2018 - PSA had risen from 5 to 16 in 6 months.- the imaging showed some lymph node involvement (the radiologist said one node - but my oncologist thinks 3 to 5) but no bone mets -

I started Lupron in November 2018, IMRT in December 2018 to early Feb 2019 and added Zytiga in March 2019.

My PSA has been <0.1 consistently since my radiation.

I just got my 4 month Lupron shot last week - and my next is due in January - and my urologist is supportive of this being my last shot.

In January - i will have been on Lupron for 27 months, Zytiga for 22 months and 23 months from the end of my IMRT. My oncologist wants me on Zytiga for 2 years - so i will be 2 months short.

I am tolerating the ADT SE as well as anyone - but i'm getting anxious to move on and hopefully stay at something less than a B cup.

I am interested in any advice you have.

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PabloK profile image
PabloK
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15 Replies
Tall_Allen profile image
Tall_Allen

I think he is right about at least 2 years of ADT with positive lymph nodes. Arguably, shorter with Zytiga. Tamoxifen may help with the breasts.

PabloK profile image
PabloK in reply toTall_Allen

will tamoxifen help now - or is the horse out of the barn?

Tall_Allen profile image
Tall_Allen in reply toPabloK

20 mg/day may reverse it, 10 mg/day may prevent it. If it is well established, cortisone shots can sometimes dissolve the excess tissue; if not, it has to be cut out surgically.

Magnus1964 profile image
Magnus1964

If Lupon and zytiga are still working why stop? Putting a time line on a drug does not sound right.

larry_dammit profile image
larry_dammit

Get the tests as often as you can. Mri and ct with contrast. You don’t want cancer in your bones. Fight that war warrior

treedown profile image
treedown

I hope to be where you are in a year please keep posting good and bad. Thanks

j-o-h-n profile image
j-o-h-n

Remember when we use to worry about what necktie we should wear?.... now it's which bra......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/25/2020 7:39 PM DST

SPEEDYX profile image
SPEEDYX in reply toj-o-h-n

I use a living Bra

j-o-h-n profile image
j-o-h-n in reply toSPEEDYX

I use a German one...... Keepsemfromflapping.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/25/2020 8:04 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

At least I don't need a jock strap any more.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

yes you do..... face mask...... remember?

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 09/26/2020 7:15 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

I don't have a Grecian nose.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

They don't call you Mehmet Özyürek jr. for nuttin....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 09/26/2020 10:05 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

I always thought it was Durante. We'll never know. They give Mehmet's in cm. That's Turkish to me.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

cm = cucumber measurement..... That's a Turkish delight to me..........

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 09/27/2020 12:13 AM DST

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