Decision Time is Coming: I was... - Advanced Prostate...

Advanced Prostate Cancer

22,277 members27,978 posts

Decision Time is Coming

PabloK profile image
15 Replies

I was diagnosed in August 2018 - PSA had risen from 5 to 16 in 6 months.- the imaging showed some lymph node involvement (the radiologist said one node - but my oncologist thinks 3 to 5) but no bone mets -

I started Lupron in November 2018, IMRT in December 2018 to early Feb 2019 and added Zytiga in March 2019.

My PSA has been <0.1 consistently since my radiation.

I just got my 4 month Lupron shot last week - and my next is due in January - and my urologist is supportive of this being my last shot.

In January - i will have been on Lupron for 27 months, Zytiga for 22 months and 23 months from the end of my IMRT. My oncologist wants me on Zytiga for 2 years - so i will be 2 months short.

I am tolerating the ADT SE as well as anyone - but i'm getting anxious to move on and hopefully stay at something less than a B cup.

I am interested in any advice you have.

Written by
PabloK profile image
PabloK
To view profiles and participate in discussions please or .
Read more about...
15 Replies
Tall_Allen profile image
Tall_Allen

I think he is right about at least 2 years of ADT with positive lymph nodes. Arguably, shorter with Zytiga. Tamoxifen may help with the breasts.

PabloK profile image
PabloK in reply toTall_Allen

will tamoxifen help now - or is the horse out of the barn?

Tall_Allen profile image
Tall_Allen in reply toPabloK

20 mg/day may reverse it, 10 mg/day may prevent it. If it is well established, cortisone shots can sometimes dissolve the excess tissue; if not, it has to be cut out surgically.

Magnus1964 profile image
Magnus1964

If Lupon and zytiga are still working why stop? Putting a time line on a drug does not sound right.

larry_dammit profile image
larry_dammit

Get the tests as often as you can. Mri and ct with contrast. You don’t want cancer in your bones. Fight that war warrior

treedown profile image
treedown

I hope to be where you are in a year please keep posting good and bad. Thanks

j-o-h-n profile image
j-o-h-n

Remember when we use to worry about what necktie we should wear?.... now it's which bra......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/25/2020 7:39 PM DST

SPEEDYX profile image
SPEEDYX in reply toj-o-h-n

I use a living Bra

j-o-h-n profile image
j-o-h-n in reply toSPEEDYX

I use a German one...... Keepsemfromflapping.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/25/2020 8:04 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

At least I don't need a jock strap any more.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

yes you do..... face mask...... remember?

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 09/26/2020 7:15 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

I don't have a Grecian nose.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

They don't call you Mehmet Özyürek jr. for nuttin....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 09/26/2020 10:05 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

I always thought it was Durante. We'll never know. They give Mehmet's in cm. That's Turkish to me.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

cm = cucumber measurement..... That's a Turkish delight to me..........

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 09/27/2020 12:13 AM DST

Not what you're looking for?

You may also like...

My Last Lupron Shot (maybe ever!)

This week I received my 4th and last 6 month Lupron Shot. Will it be my last? My PC Background: RP...
Moespy profile image

Update On My Metastatic Prostate Cancer

In 2018, PET scan and lymph node biopsy confirmed metastasis of my prostate cancer to many lymph...
dac500 profile image

I'm new here. Introducing myself.

Hello All. 59 years old. DX PCa in July 2018 with Gleason 9 (4+5). PSA 87. Mets to bladder,...
Pleroma profile image

mCSPC vs mCRPC? Does my MO have it right?

My MO says I'm mCRPC and I think my PSA elevation is due to radiation bounce. I'm Oligo and 75 YO...

Decision time

First off I am not computer literate so please excuse me when I don't do something right. you can...
mcp1941 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.