Hi friends! Just returned from a visit at MD Anderson and had good news I wanted to share in case it helps someone else here.
My case is a bit unique - I have advanced prostate cancer, but the only place I have any sign of metastatic disease is in the T8 vertebra. (I’ll leave the rest of my history at the bottom of the post).
After having the third CT scan and bone scan in the last 18-months, I again showed no change. My PSA has gone from 227 in 2015 to undetectable for a year and slowly rising now, bouncing around a bit, to 1.6.
So my doctor hypothesized that I may have no other metastatic disease. She confirmed this by ordering a PET scan and a prostate MRI. To address the slowly rising PSA, she is adding Zytiga and Prednisone to my Lupron therapy. But she also wants me to have either radiation to the prostate, a prostatectomy or both. The theory being that perhaps they can significantly slow the growth of the cancer or kill it. If this works, she hopes to give me an ADT holiday in about a year (assuming my PSA goes to 0 or stays very low and stable), or, best case, with ongoing monitoring, stop it forever.
She stressed this is not the conventional approach (I have read about others on this site talking about it). Happy to see that they are treating me, with my personal disease circumstance, and not just doing what ‘the protocol’ suggests.
Whatever I choose (radiation and/or prostatectomy), I’ll keep everyone posted on my results in case it helps others.
Here’s my history: PSA 227, diagnosed in May 2015, Lupron since diagnosis, PSA went to 0 in 4-months, stayed there for a year. Had radiation at diagnosis to T8 vertebra and had 6 rounds of chemo in the fall of 2015. Gleason 4+4 . PSA now 1.6 after slowly rising for 18-months.
Have a nice weekend! My wife and I are! First good news in a long time! 😊 As one of our friends on this site always says, “never give in!”