At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day.
While waiting in the treatment area, there was some kind of a delay. Nurse came over after about 30 minutes, and told me that Tagawa needed to see me at his office on another floor. I was then put in to an exam room and waited another hour or so. He finally came in and told me that the scans and blood work showed continued progression with 3 growing mm sized nodules in the lung and PSA now at 62. So I am off the trial; no Keytruda infusion and no more Xtandi.
He is recommending I start Docetaxl. Also, possibly consider DORA trial combining Docetaxl with Radium 223. I have not had any chemo to date. I had gotten info from posts on this forum, and other support group participants, that I should consider using Cabazitaxl with Carboplatin because of my BRCA2 mutation and fewer side effects.
I have an appt with Dr Saraiya, my MO at CINJ, on Monday 1/31/22 to discuss chemo and other possible treatment options. I also have a telemed appt with Dr Marshall on Wednesday 2/2/22, an associate of Dr Denmeade at Johns Hopkins, to discuss BAT treatment. In addition, I sent email requests to Dr Aggarwal at UCSF and Dr Stein at NYP for their input, as I have had appts with each of them in the past.
I will not sit around and wait too long for my next treatment, whatever that my be. We all need to be proactive and our own best advocate.