Diet: I’m wondering if anyone has had... - Advanced Prostate...

Advanced Prostate Cancer

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Diet

Sipj profile image
Sipj
34 Replies

I’m wondering if anyone has had success with a specific diet? My husband has PC Mets all through skeleton and has little energy and a lot of skeletal pain. Palliative Care radiation to hips and femur, Docetaxal chemo and ADT currently. Looking for something to help with more energy, does not feed the cancer, and just an all over health/lifestyle change we can do together. Thank you in advance!

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Sipj
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34 Replies
Tall_Allen profile image
Tall_Allen

Talk to dietician about high energy supplementation. Marijuana may help with appetite. Don't worry about "feeding the cancer" - much more important to enjoy life.

mrscruffy profile image
mrscruffy

For me, I lift weights and eat once every 24 to 36 hours, tons of energy and only meat I eat is chicken, turkey and fish. Not for everybody but works for me. In order to build muscle you need a caloric surplus which is easy with such low metabolism. When my eight gets high for me just cut back calories and weight comes off pretty easily. Check with your doctor before starting diet change and working out. Anecdotal thing here is since I have started working out and cutting calories mets have shrunk or disappeared.

treedown profile image
treedown

The Mediterranean Diet seems to be widely accepted as a prudent diet choice. In general I recommend eating whole unprocessed foods. Lots of diversity of veggies and fruits, whole grains and unsalted raw nuts. I also lean towards a variety of mushrooms. I think the study of the gut microbiome will lead to additional nutritional insights to help various diseases down the line. So I eat prebiotic foods and prebiotic. Also fermented foods. These are all my opinions and what I eat.

spw1 profile image
spw1 in reply totreedown

My husband is doing a similar thing with whole foods plant based, lots of raw vegetables, fermented too (at home if possible) and mushrooms of a variety. He calls it no SOS (salt oil and added sugars). Tends to eat a variety to keep a good gut microbiome. His bone met pains started to go away when he changed his diet before ADT treatment started. He knew it because he did not need his pain medications. I think it is cashless clay who eats steel cut oats cooked without soaking on this forum. My husband's breakfast nowadays is that with berries. He then has one meal of other stuff. Tends to eat two meals in a day. Does not need coffee but drinks green tea and chaga tea made in a slow cooker. He still takes all ADT, Avodart and Enzalutamide but his overall health and managing of pain has been helped by the diet. Very few side effects although that may be due to his exercise regime too.

Sipj profile image
Sipj in reply tospw1

Thank you. This is all great info. And lowering of his pain sounds promising.

LearnAll profile image
LearnAll

Diet alone will not kill prostate cancer but right kind of food CAN slow progression and may make treatments work better.Some well established food item include (1) Sulforaphane rich foods like Cauliflower, Brocolli, Radishes, Cabbage) (2) Resveratrol rich foods like Dark Grapes, Guava, pomegranate etc. (3) Green tea and Black tea which contain EGCG and polyphenolic compounds. (4) Green leafy vegetables and tubers like Sweet potatoes, purple yam ,Ginger, Turmeric, Onions and Garlic etc.

One big rule is ...AVOID saturated fat of Animal origin as much as possible.

Sipj profile image
Sipj in reply toLearnAll

Thank you so much for the info!

Oct18 profile image
Oct18 in reply toSipj

I agree with the last 2 posts and practice the same plant based diet.....but depending on where your husband is at, if the "treatment" is more difficult than the actual problem, then do what is best for a sound peace of mind if that makes sense. It was worth trying something radical for me with diet and exercise, but I was 46 at time of dx, single parent with 3 kids to raise. If I were 20 years older, I would probably not give up as much foods that I loved. I sure do miss my shrimp and grits, but I sure do feel good everyday and exercise regularly and I know diet has been a big help.

GeorgeGlass profile image
GeorgeGlass

Check out the website forksoverknives for nutritional information. Mostly plant based. If you eat these healthy foods, it's near impossible to overeat because it takes a lot of time and energy to eat the healthy foods. Avoid all processed and junk foods. The healthy foods can taste very good if you know what to add to them (mustards, vinegars, seasonings, some fruits, hot sauces etc). Organic steel cut sprouted oatmeal, cage free egg whites with lots of mushrooms and onions, organic salads twice a day. Organic veggies twice a day.

A few years ago I had stomach pains. Doctors gave my proton pump inhibitors. They made things much worse (they remove your essential acids, they can cause cancer and heart disease) I stopped taking them and started taking 3-4 kinds of probiotics (Culturelle is one of them) daily and my stomach got better within 1-2 weeks. I told the doctor, but of course they always say the same thing - whatever you're doing, keep doing it, but they almost always ignore the details of what causes the improvements.

For energy, the only think that works for me is Matcha green tea powder. I use Jade Leaf brand. One heaping teaspoon in 175 degree water, once a day gives me 3-6 hours of energy during the day. I work out at night - moderate exercise, then do a 20 minute NO-EMF infrared sauna before taking a cool/lukewarm shower and then to bed.

Sipj profile image
Sipj in reply toGeorgeGlass

Thank you so much. The matcha tea will definitely be something I can grab for everyday to try.

MateoBeach profile image
MateoBeach in reply toGeorgeGlass

Sounds like a lovely routine. 👍👍

katartizo61 profile image
katartizo61

There are many good suggestions listed. My bone mets symptoms improved with eliminating egg yolks, red meat, dairy, all sugar (this is primary) I supplement with a wide variety on formula's love mushrooms' and immune system builders.

NecessarilySo profile image
NecessarilySo

Lycopenes work for me. They stop or reduce cancer cell growth, which takes pressure off nerves, leading to temporary loss of pain. It supposedly enlists T cells which kill cancer cells. I have been doing it for almost ten years now, along with no egg yolks, beef or pork, and with hormone therapy. I use lycopene pill form in foods, eat spaghetti with marinara sauce frequenly, drink gac juice each morning, or V8 juice. Sauces like catsup, taco sauce, thousand island dressing, and bbq sauce give me about 50 mg per day of lycopenes. At times I try to double that. I also use hothot showers and a portable sauna to kill cancer cells.

London441 profile image
London441

A plant based diet with some select supplements is great, and you have plenty of good suggestions on that.

Don’t try to do too much though, it can get overwhelming, not to mention expensive. Diversify!

How much is he able to exercise? I can appreciate with his pain and medications it may be difficult, but the difference it can make is palpable. If he has been walking, or even walking in a pool great. It is so much better than nothing.

The more he is able to move the better, anything at all. it will help more than diet for his energy, and as part of a ‘overall health and lifestyle change’ it is indispensable.

Also, it not only ‘doesn’t feed the cancer’, it does better than that.

Sipj profile image
Sipj in reply toLondon441

He tries to be active about 4 hours a day. He does have a lot of bone mets so I worry about fractures but palliative radiation was just completed to hopefully help with that worry. I do agree, exercise is good for the mind and body. Thank you for that reminder.

London441 profile image
London441 in reply toSipj

It is so heartwarming to see someone care the way you obviously do. Think not of fractures from exercise, which will prevent them. Just no falling! Hopefully he is also taking a bone strengthening agent.

CAMPSOUPS profile image
CAMPSOUPS in reply toSipj

I have read thru some of your bio/posts and my god I am sorry to see what you and your husband have already been thru and continue to endure. My thoughts are with you. I hope relief, some peace and stability of his cancer are coming to you soon.

IMHO now is not the time to do much with diet. Coffee if his stomach can handle it or tea might help perk him up mentally but being under chemo now, he needs to eat whatever suits him. Further a special diet now will do nothing for him. If a diet were available to starve or suppress cancer you would have to be on it for years to make a difference and as of now, we have no proof. None the less eating healthy and balanced is best. We all know what that is this day and age so I will spare the details. But again, if he is having trouble eating then eat whatever suits him.

I hope you realize that each individual reacts differently to chemo. He could be really run down from it. From your posts it looks like neutropenia hit him hard as well. I was only able to manage about 4 very short (200 feet) feet shuffling walks a day at times. I made it a point not to be a chemo patient so I got dressed and went about daily business as best I could but there were times when the couch and bed were occupied heavily.

I was lucky to not have nausea or eating problems during chemo.

Is your husband able to eat? Or is he having trouble eating?

Sipj profile image
Sipj in reply toCAMPSOUPS

Thank you for your response. He does eat a little. He has a small appetite and usually one meal a day (dinner) and a protein shake earlier in the day. He has no nausea, just a small appetite which he has always had, worse now with the cancer, fatigue and treatments. He is not a coffee drinker but I’m thinking I will encourage some tea for energy.

CAMPSOUPS profile image
CAMPSOUPS in reply toSipj

Well yes I can see why you questioned diet and energy.Hopefully he's not loosing weight dramatically. Reminds me of all the free protein shakes at the chemo infusion lounge.

My cancer at DX was so high volume for lack of better wording that I had lost my appetite and weight.

Once my first Lupron injection and the first couple chemo infusions started doing their thing my appetite returned. Too much lol.

I enjoyed broth soups about every day during chemo and still do a few times a week. Psychologically anyway I felt like I could feel the nutrients going into my blood stream and although placebo I felt a bit more energized.

Stuff added to the broth soups like mushrooms, kale, etc. tasty.

Especially good with a miso soup base but depending on where you live might be hard to purchase.

Some good green tea recommendations here in the thread.

Yamamotoyama is a good convenient green bag tea but if not available rumor is that Costco's Kirkland Signature Organic Japanese Green Tea is the same thing just re-branded. Any green tea that is Matcha I find very tasty as it is very strong in flavor. The Matcha powders you can make your own tea vs. the bag. More expensive as Matcha is prized more than standard green tea.

Currumpaw profile image
Currumpaw

Hello Sipj,

I hope you find this helpful.

Read about Dr. Ruth Heidrich.

A link below--copy the entirety between the lines. note that at the end that --Keywords mentions, Adventist, a community of the Seventh Day Adventist religion that comprise one of the world's "Blue Zones" here in the US of A!

___________________________________________________________________________________________________

Are strict vegetarians protected against prostate cancer?

pubmed.ncbi.nlm.nih.gov/265...

___________________________________________________________________________________________________

A video that notes an interesting case.

youtu.be/mffGLuctKoE

Many years ago one the success stories among those who practice Macrobiotics felt he was cured of his cancer and could return to a more normal diet. His cancer returned. When he went back to the diet that had cured him it no longer worked. It will be on the net.

I have a friend that became a vegan because his father had prostate cancer. There is a group of vegans in Rhode Island that once a month get together to descend upon one of the vegan restaurants here. Interestingly he told me that quite a few in the group had cancers and are now healthy. A few in the group were told there was nothing more that could be done yet they are healthy today after becoming vegans. Nothing--nothing works for everyone, not chemo, radiation, drugs, surgeries or combinations of those as well as alternative treatments. Being negative or allowing negative people to influence how you think about what results you can expect or wish to have is only detrimental to your efforts. Be strong. Conventional. alternative and lifestyle changes can alone or in combinations can give some satisfying results.

There is a second video--a part 2 I will now edit into the post I made about three hours ago. I would have liked to been included in the discussion on this subject but this did not come into my email until 0130 hours this morning. Those who responded early posted their responses TWO DAYS AGO! Everyone has literally moved onto and are responding to the present posts that I won't receive until my usual 0130 hours while asleep tomorrow! My chance to join discussions is always the day after. I wonder why HU sends me "yesterday's news".

Here is part 2.

youtu.be/jnC2OeDVJeM

Currumpaw

Sipj profile image
Sipj in reply toCurrumpaw

Thank you for this info, it is all very informational.

LearnAll profile image
LearnAll in reply toCurrumpaw

Currumpaw, Dont post these beautiful pictures of my most liked foods. I feel like leaving the work and head straight to Asian Grocery store 1 mile down the street. They have so many fresh organic produce.

Currumpaw profile image
Currumpaw in reply toLearnAll

Hey LearnAll!

I haven't opened the package yet but--I have an Omega, masticating juicer. Before everyone thinks that I will be on a crusade to get people juicing the fact is I started juicing about 40 years ago with a juicer that cost about $40--but that $40 bought more 40 years ago. Juicing is a little work but back then I juiced carrots with a little celery. Neighbors and friends were surprised at how good the juice tasted. I still have that juicer in the basement.

Using a masticating juicer supposedly increases the time a juice can be kept in the refrigerator simply because the centrifugal juicers create heat when juicing shortening the time to nutrient loss and taste.

I would say that claim is true. When I was involved in manufacturing specialty chemicals and pharmaceuticals neither company worked a seven day at all times. If a batch being processed in a reactor was placed on hold for a weekend shut down the atmosphere in the reactor was purged of all oxygen and pressurized with a few pounds of nitrogen to prevent oxidation. The cooling system for the reactor was set at the temperature that it was necessary to maintain simply because a batch in process needs agitation and the friction of agitation will increase the temperature of the batch in process. It is easy to see that the friction produced on the vegetables being juiced in a centrifugal blender will heat the vegetable. The centrifugal blenders are fine. Nutrient loss shouldn't be that much a concern if one doesn't intend to store the juice for several days.

Looking at those vegetables makes me think about juicing. I am doing some work on the house now, preparing for winter. The juicer might be placed in service when the weather changes.

Currumpaw

addicted2cycling profile image
addicted2cycling in reply toCurrumpaw

juicing ???

thespruceeats.com/best-cold...

“...Drinking cold-pressed juices gives more nutrients and enzymes than eating them," says Stacy Davis, RD LDN, at Flavorful Lifestyle. "It also provides more nutrients and vitamins since it isn’t heated or pasteurized—and it tastes delicious...”

oils???

goodnature.com/blog/expelle...

" ...Choosing Between Expeller-Pressed and Cold-Pressed Oil

It is important to remember that cold-pressed oils should be used in lower temperatures, for example, salad dressings, dips, and more. If cold-pressed oils are exposed to high amounts of heat, it’s possible that they will lose their high-quality nutrients. When searching for the best cooking oils to be used at higher temperatures, expeller-pressed oil will be your best option... "

Currumpaw profile image
Currumpaw in reply toaddicted2cycling

Thank you addicted2cycling!

Very good info! We should think about the processes that get the oils we use into the bottles. Hexane is used to extract many oils that we consume. Also, I rarely buy anything not in a glass bottle.

A little interesting info from my pharmaceutical days.

The company I worked for had many thousands of gallons of hexane stored in the tank farm. It was used in a particular batch for a vehicle, a diluent at a point in the manufacturing process. At a meeting, the director of materials management mentioned that if there was any interest, he could sell the hexane for more of a profit than manufacturing the batch the hexane was used in would make! There was a world wide hexane shortage at that time and the company that had sold it to my company had inquired as to whether --"Did you use the hexane yet? Would you sell it back to us? " LOL!

Hexane is a petroleum distillate.

Currumpaw

addicted2cycling profile image
addicted2cycling in reply toCurrumpaw

Glass rules except for my Czechoslovakian Queen Lace Lead Crystal 😀

j-o-h-n profile image
j-o-h-n

Let him eat what he wants........... (me... I want Chocolate chip ice cream ((two scoops))

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 10/20/2021 9:23 PM DST

addicted2cycling profile image
addicted2cycling in reply toj-o-h-n

N.Y. Style Cheesecake with ice cream on the side. 👍👍

j-o-h-n profile image
j-o-h-n in reply toaddicted2cycling

HEAVEN.........

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 10/22/2021 1:49 PM DST

pakb profile image
pakb

I read your profile and can so relate to the research. After 4 years I now try to limit my research time to 1-2 hours in the mornings. In the beginning it took over my days. Our daughter has Crohn's so I had a bit of a leg up on researching nutrition already. My husband was 49 at diagnosis Aug of 2017. Gleason 9 mets to multiple bones and local lymph nodes PSA over 677. He wanted some sort of control so, along with lupron plus taxotere immediately he went vegan and began working out with weights. We ran everything by his oncology team first. He did not lose weight during chemo and worked during all 6 rounds. He had three pea protein shakes with a phytonutrient powder during chemo plus electrolyte drink. He also had one meal. He was an active guy previously- surfer, windsurfer, collegiate decathelete- but started gym routine he hadn't done in years. He always said he went 'healthy vegan' as opposed to 'oreo vegan'. Lots of cruciferous vegetables, mushrooms, miso soup with seaweed, pea protein protein shakes with phytonutrient-rich greens etc. I got a lot if ideas from 'forks over knives' at first. Stopped drinking for 2 years. I think the drugs were working the cancer and his diet/activity helping him feel good as well as feel like he was in control of something. After 6 rounds chemo he moved on to lupron and zytiga plus prednisone. He's been on that since. Last year he added seafood in to his diet and now has occasional beer or wine. His PSA has never gone below 2.8. It ticks up once in a while (he gets it done every 2 months) but then will trend back down. Last year's scans showed no active cancer. His oncology team is hesitant to say remission. He'll have new scans in December this year. He's been more lax with workouts this past year and I've noticed more forgetfulness. He does still work in his demanding job. He's very good at it but definitely tires more easily. I truly feel that the diet has helped him with energy, kept his weight up with chemo, and overall feeling better. But it also made him feel more in control. That helped his mindset.

Sipj profile image
Sipj in reply topakb

This is a great story. Thank you for sharing.

pakb profile image
pakb in reply toSipj

It is a rough road and because it's not the same for any two men it takes some trial. I hope your husband gets some energy back. Sending you hugs! Caregiving is difficult- take some time for yourself as well❤

Sipj profile image
Sipj in reply topakb

Thank you 🙏

kuki2 profile image
kuki2

Of all the things I've tried in dealing with my metastatic PC, by far the two best things that have made the cancer experience less scary and painful, even more enjoyable, have been riding my motorbike, often despite the bone mets' pains, and reading the Bible every day.

I live in a rural area in Northern NSW half an hour's ride from town and the road between home and the town is as good as any stretch of bike road I've come across since I got into bikes as a 19 year old. I ride a KTM 390 Adv, which is light enough I can pick it up if I drop it - something I haven't done for a long time but riding off-road it can always happen.

When I'm riding fast on a windy road and concentrating on getting the lines and speed through the corners just right the adrenalin kicks in and there's no room left in my brain to feel any pain. Switching between seat riding and standing on the pegs adds another level of complexity that makes it even more in-the-moment.

The Bible: I was fortunate enough to take up investigating the God questions twenty years ago and I got into the habit of regular, albeit part-time, Bible reading. Once I got cancer though I gradually found myself doing it more and more and getting closer and closer to God, to the point where I now have no fear whatsoever of leaving this life and going on to the next one.

This to me is the perfect way to face death by cancer. It's come to mean that I actually am glad to have had this experience. Death by cancer, the sort that your husband and I have, metastatic PC , can lead us by the hand into our various daily routines in a way that changes us into beings who are ready to move on when God says it's time.

I saw a video on YouTube a year or two ago by a Jewish Christian convert named Dr James Tour, one of the world's top organic chemists who is the most referenced source in science journal articles today. If you watch his testimony you may be encouraged as I was to really make a project of Bible study. Dr Tour says just start reading at Genesis 1 and go all the way through, one or two chapters a day, nice and slow, all the way to Revelation 22.

I would add to that advice, as you read follow every cross-reference trail you come across all the way to the end and then go back to where you first detoured and continue. Doing this will open up the full vista of the miraculous scope of the entirety of God's opus. Just make sure you get a Bible that has plenty of cross-references, a lot of the ones you find online don't have any. My favourite Bible is an old hard-cover NLT with large print. It belonged to a mate of mine who died in the 2017 Northern NSW flood when his caravan was buried in floodwaters that raged through the park where he lived.

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