ADT plus Zytiga for 4 years. Has anyone else experienced different phases of fatigue.
Some weeks more energy then hitting a phase of really low energy levels.
Is so have you any ideas or things you have tried and has helped with this problem.
thanks for any advice.
yes , I have that to extremes…. Many in the know guys on the group say that light exercise, maybe resistance bands , help greatly. You have to fight thru it and use the bands, after a couple - few weeks , it gets much better. Naturally run it by your oncologist / cardiologist to make sure he is physically able.
❤️❤️❤️
Many of us experience fatigue. As Kaliber said, I’ve also found that exercise helps me to feel stronger and helps relieve the fatigue. My preferred activity is walking, but I also do resistance exercises as well.
Occasionally I will get hit with a wave of fatigue so draining that I just want to sit or lay down right where I am at and not move.
This severe fatigue also negatively impacts the quality of my reasoning. I’ve learned that when I’m experiencing this more extreme fatigue I cannot trust my own thinking.
Also, I am on a primarily plant based diet. I have to monitor both my iron and my protein. In the past, if the fatigue persists for more than a couple of days I’ve bumped up my protein intake and noticed a difference pretty quickly.
I have never experienced fatigue in the 6 years and 9 months on Zytiga/Lupron. I attribute this to lifting heavy in the gym 6 days a week as well as high protein diet. I try to never miss a workout. When I only did cardio I still had same success, I think it may be from release of Endorphins. Or, maybe I am just lucky
Thanks for you reply congratulations on the length of time on the meds. Do you have any bone problems? After my 4 years on the same meds as you I’ve developed osteopenia and had a spine fracture!!!
MO says I have the beginning of Osteopenia and will receive shot next month to remediate this. I have never had a fracture or break of any kind. I attribute my success to my workouts in the gym. No proof of that but it can't hurt. My MO and personal trainer are OK with lifting heavy but limit my sets to 3 a day.
Both cardiovascular exercise and weight lifting. No matter how tired you feel certain days, do one or the other anyway. It is ADT’s Kryptonite, absolutely.
I'm struggling with profound fatigue at the moment. I have about 3 good hours a day and the remainder is spent sleeping or resting. It could be caused, in part, by SAD, as Michigan is pretty gloomy this time of year. I haven't had the energy to exercise, but it sounds like that's the best treatment. I hope you find an answer to your fatigue issue. I know how it impacts Qol.
Exercise has always been the key to overcoming fatigue for me...however Zytiga made me so tired I had no desire to do such. My Oncologist gave me a Rx for Ritalin (5mg 2x per day) and it has made a huge difference and now I'm not so tired and can exercise. It also helped significantly in reducing the desire to nap each afternoon.
DH also is on Ritalin for energy. It has helped his fatigue which was debilitating for a while.
Yes, absolutely, I’ve been on Xtandi for about 8 years now. Fatigue levels can fluctuate day to day and week to week. I exercise daily no matter how I feel and keeping a regimented sleep schedule seems to help a bit. Some doctors will prescribe Ritalin or Adderol for cancer related fatigue and cognitive issues, it works well.
Ed
I've asked my MO and am taking Ginseng for intense waves of drowsiness. I have both pure Korean Panax 2600 mg and drugstore Nature's Bounty Ginseng Complex, ~300mg. I took the first and was alert all day and went to sleep easily. But it is a high dose, so I took the 2nd and found for me that 2 capsules did the trick, totaling ~600 mg Ginseng. I only do this weekdays since I still work.
Yes. Ask your oncologist about Provigil. Helps me with energy and focus. Hope something works.
But regardless of medications and activity level, my fatigue is unpredictable. Some days are just not worth getting out of bed for. Not debilitating, just a drag. Persevere!
Get a houseboy.....Let him deal with the lows....
Good Luck, Good Health and Good Humor.
j-o-h-n Monday 02/13/2023 10:23 PM EST
I made it 18 months and it almost killed me. They say exercise is the thing and I did feel better when I had the energy to do it. Problem is finding the energy to start. Is the intermittent thing out of the question?
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