I am learning so much from all of you, and your posts give me so much hope!
I am Gleason nine stage 4 Oligometastatic with 5 bone Mets. I was diagnosed in late February After a TURP for what they thought was BPH. I have been on Lupron and Zytiga since then. PSA went from 4.1 to undetectable and has been undetectable for 10 weeks. I will be having radiation to my prostate as well as my largest bone met this fall.
Do you all have any recommendations for diet to help with prostate cancer? I am eating lots and lots of veggies, wild caught salmon three times a week but other than that have gone vegetarian with lots of beans. I have given up dairy, sugar, gluten, all simple carbohydrates, meat, eggs, and pretty much all processed food as well as wine.
Thank you so much; your stories inspire me so much!
Jon
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Sitano1
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Sounds like you have this in hand. You described my diet for the past 27 years. I became a vegetarian a few days after being diagnosed. Later added fish.
You might consider adding vitamin D3 to your diet. Cancer patients have low D3 levels.
Super happy with the diet. I don't miss the junk food.
Health-wise, I have never felt better. All my numbers are near perfect.
I did add Kefir to the diet (dairy) in small quantities, but only from a grass fed, non-hormoned cow. I take it more for the probiotic benefit. My focus has been on getting my gut flora in the best possible condition.
Keeping with the diet keeps my body in optimum health to battle the side-effects of the treatments. It is not going to stop the spread of the tumors (perhaps slow them down marginally, but that cannot be proven scientifically).
I take no meds other than Lupron and Zytiga. Calcium w/D3 is the only supplement - except I take the more advanced "Bone-Up" type bone support rather than straight Calcium Carbonate. Bone-up has other minerals like MK-7 that help absorption of Calcium. But most of us lose bone density rapidly even with Calcium supplements and rigorous exercise. At a certain point you have to get bone-strengthening infusions like Zometa (zoledronic acid).
I hate to see people torturing themselves with radical diets when there is no compelling evidence that it makes any difference, at least at 2 years. This is a time to treat yourself well, not to practice asceticism. The people who preach giving up those things do not understand research and usually provide only one-sided pictures. Of course, if you psychologically feel better doing that to yourself, by all means, do it.
The best study we have so far is the MEAL study, which showed that increasing vegetable intake had no effect on cancer progression:
One question I do have re diet. Pre diagnosis I was taking 2000 i u of vitamin D3. I now read that taking vitamin D supplements adversley affects testosterone in prostate cancer patients trying to keep their T down. Any info on that? Thanks.
Thanks TA was there any more details on this statement ? "Low BMI (<25) may potentiate the effect of Vitamin D on cancer." My D was at 22 when I started supplementing a little higher. 26 a month later. I will cut it by half again until winter after reading this.
"Do you all have any recommendations for diet to help with prostate cancer?" No, other than eat a healthy balanced diet. But I do have a recommendation if, like me, you enjoy good food and wine (but you're not obese or an alcoholic) and you want to maximize your QOL within whatever LOL you have left: Enjoy a good meal with a glass of wine.
I've not changed any of my diet, I eat well, a good balanced diet, so don't hang your hat on everything that's written, one week it's the Mediterranean diet, next week it's a no wine diet, the following month it's back as it was etc, etc.
If your eight is correct for your height, then why fix something that's not broken.
Even my naturopathic doc says that diet supports around the margins, but who doesn't want every scrap of support? I’ve cut out red meat (might make an exception for small amounts of my hunted venison), and dairy, refined carbs and added sugars. Allow a small glass of red wine a few times a week, and my homemade hard cider. Lots of veggies and fish, and luckily, I love dense rye breads and steel cut oats, so I don’t feel carb deprived.
I’m also on a naturopathic supplement program, to supplement my ADT and radiation treatments. I try to do everything that supports and does no harm.
Marvelous diet changes. I have nothing to add in that area but would suggest IP6. Please see my previous posts for discussion of supplements including IP6.
I should add that the MEAL Study is poorly designed. Full disclosure: I spent considerable time at Berkeley studying research design and statistics and base my opinions about the MEAL study on that academic experience.
Sitano1 - I have now read a post above from tall allen that in my opinion is the most asinine, moronic post I've ever seen on this forum. It shows me that this guy's sheer arrogance and denial of fact is literally dangerous to good people like you who come here seeking truth and positive advice for ALL viable proven treatments. The fact that this guy equates eating naturally and healthy, the very way the human body was designed to be nourished, with words like "torture" and "asceticism" shows me how incredibly stupid and close-minded he is. Many people hold this guy in high esteem as he touts his close-minded stupid assertions of no other options other than conventional Lupron, more Lupron... radiation and more radiation..... and I've seen posts where a patients doctor advises 6 months of Lupron yet tall allen insists the patient should be on 18 months Lupron!......Tall allen you have no authority to be giving medical advice on this forum or anywhere else! Especially the stupid close-minded DANGEROUS nonsense you tout as the only way!....It mystifies me of how this community holds this arrogant fool in such high esteem when all he ever says is the same thing over and over again....which is pushing for the brutal, dangerous life-changing and usually irreversible effects of Lupron and other dangerous advice....HE IS NOT A DOCTOR and he is doing this community a disservice by carrying on as one!....
I am not trashing these conventional treatments, but I feel every man who's been diagnosed should start with the basics of simplicity first, like life changes from bad eating habits and stopping the very things that likely gave you the cancer in the first place, which in practically every case would be diet! Then they should investigate and learn all there is to know about the latest advances in natural treatments and alternative treatments and use these extreme conventional treatments open only as a last resort!
Sitano1 - There are MANY people who have been CURED of advanced prostate cancer, many more who have reversed mets and many more who have been able to hold it at bay all with natural/alternative treatments. I am one of them! I had advanced stage 4 with mets to neck, ribs, spine and shoulder. In 2013, I was told without conventional prostatectomy, radiation and the most dreadful Lupron, I'd be dead in 3 months. I'm here today with fully functioning prostate and have never enjoyed better overall health in every aspect to the point where I am no longer on any of the 12 pharmaceutical drugs I was on for over 20 years!......This was all the result of stopping the slow poisoning of my body with the chemical laden food I ate most of my life as well as the poisonous tap water that is full of chlorine and sodium fluoride (which is the main active ingredient in Prozac btw).
All disease is the result of cellular dysfunction caused by nutrient deprivation and/or cell toxicity. When you are sick, you are already in toxic overload and likely deprived of nutrition that your cells need. When you see your doctor for treatment he'll give you prescriptions for chemical medications. Why compound the problems by ingesting more toxins? All pharmaceutical medications are toxic to the body. True healing comes from an approach where one provides molecules that are natural and helpful in supporting and restoring normal cell functions, allowing the body to heal and restore itself to health. The human body was created by God "in the likeness of God", therefore it is completely self healing and self regulating. But this can only take effect when humans obtain the nutritional values that are in the food that God intended for humans to eat.
God designed our bodies to run efficiently and effectively on toxin free fresh water, fresh organically grown fruits, vegetables and grains that have not been subjected to genetic modification and chemical fertilizers, additives and preservatives. The human body processes the Divine intended pure foods efficiently and all cells fire effectively and trouble free. Nutrients are taken into the bloodstream and distributed throughout the body nourishing every cell. All spent fuel (waste matter) continues through the digestive tract and is efficiently discharged through healthy urination and defecation. The process repeats every day. With our bodies running with these recommended fuels there is no disease because the immune system is operating at it's peak and corrects any abnormal cell mutations, thus keeping everything running at optimum efficiency which all translates to perfect health.
I've made several posts here of my own prostate cancer success. I have posted of how I was told nearly 8 years ago I have months to live unless I immediately went on dangerous hormones, had my prostate removed followed by weeks of radiation and possible chemo. I never had any of that and not only am I alive, but my prostate is fully intact and functioning fine. How closed minded is it to believe so deeply that radiation, surgery and hormones/chemo are the ONLY treatment for first diagnosed prostate cancer of any stage? Prostate cancer is a HUGE business, but I'm not going into that.
I have medical records that show how I reversed stage 4 with mets to shoulder, ribs, neck and spine with natural/alternative protocols. The cancer is now fully contained in the prostate and last scans show those lesions shrinking.
I was directed to what I've done over the years by deep fervent Prayer. You also must believe in yourself and in the protocols because attitude is just as important as any protocol. Mind, Body and Spirit. What I'll mention to you right now is Fenbendazole. Research it and research Joe Tippens and watch his miraculous story using it. He created a Facebook page sharing his success and that has now mushroomed into where you can read HUNDREDS of success stories of total cures of all sorts of cancers by people using it on just that page. But this is just one of a plethora of natural/alternative protocols. Also investigate Artemisinin. It's another naturally derived product that has case history evidence of curing cancer. I use both of these and hold them both as the primary treatments to my personal success.
When your doctor tells you you only have the standard options of gland removal, radiation and hormones, he's simply exhausting the extent of his knowledge. Believe me, very few doctors look outside the box. They only do and believe what they've been taught. Nothing more!
After nearly 8 years of doctors ridiculing me and trashing alternative treatments (despite my results) I found an oncologist last year at Moffitt Cancer Center in Tampa, Dr, Julio-Pow-Sang, MD. He is the Chair of the Department of Genitourinary Oncology and he was astounded by my results on Fenbendazole and DMSO. He is the ONLY doctor I've met with over the past nearly 8 years that didn't scoff, ridicule, criticize alternative treatments like some of the guys on this forum do. After seeing my last scan results he actually pulled a stool up and looked me in the eyes and said "Mr Frank, these results are remarkable. Let me tell you something, we don't know everything there is to know about this disease, in fact as a whole, we know very little, I am excited with these results. You just keep going".
Keep in mind that every one of the standard treatments that conventional medicine will offer you will change your life forever. Permanent, irreversible undesirable side effects, ESPECIALLY hormone (Lupron) therapy. I've read more than one post on this forum where guys have stated that they don't know if being on Lupron with it's horrific side effects is actually better than death itself. Look those up. I'm not totally trashing these treatments because there are situations where they are an only option, but they should be considered as a last option only! Feel free to contact me direct and I can help you much more. But in the meantime, ask God to guide you to where you need to be.
Finally, during my time as a member here there have been posts from family members of prostate cancer patients who have died. I feel my value in life now is to reach out to others who have been given only conventional treatment options by doctors who have no clue of the truth. Most people, including me in the beginning elevate doctor's to gods believing that whatever they say is fact and to go against their prognosis and treatment recommendations would be foolish and ultimately deadly. I'm here to tell you that with my personal experience and in seeing hundreds of other men's success stories of cures and stabilization with natural/alternative methods, the exact opposite is true!
WTF..... My mission here is not to defend Tall_Allen, he's quite capable of defending himself. But I must say for a newbie you've got some fucking attitude.... Two posts and we are supposed to listen to your story and ignore all of the Tall_Allen's many years of expertise. Well sir, I think it's time for you to crawl up into your little ball and stop feeling sorry for yourself.
I'm normally into humor.... but you just pissed me off....
I'm not asking you or anyone else to listen to my story. It wasn't a general post. My reply was to a man who was inquiring about diet and I feel I have credible knowledge to share with him. But when I saw gross mis-information being stated I spoke up for his benefit no one else's. And believe me, I have no self pity. I have joy in my life on every level and will continue to share my story with those who ask for advice on the very topic of what has helped me.
Good for you.... and good for what you stand for..... We here do not and should not censor what other's say.... it's the way we say it that pushes our buttons..... So keep smiling.....Honey not vinegar....
I found your post today about diet and Fenben. I recently started Fenben, DMSO and vit E Succinate after finding a post by Smedley M. Luck on Joe Tippens website. I would really like to speak with you with regard to your success. I tried to treat my PC for 10 years alternatively but eventually with a psa of 1008, and a Gleason score of 9 I was at the end of my life and so started Lupron and Zytiga. Fortunately that bought me a bit more than a year and then my PSA started rising from a low of .17. I got started on the Smedley protocol from Joe Tippens web page. My Zytiga got lost in the Covid blocked mail and I couldn't (actually chose) not to go back to Canada (from Barbados) and so now I am completely off Lupron/Zytiga and fully on Fenben, DMSO and Vit E Succinate. I am doing amazingly well. All my bone sensations have gone away. I have been restricted from posting on this website due to my Fenben posts. I would really appreciate emailing or speaking with you to learn more about what you did. My email address is ehyan@ehyan.com. I will be 65 in February. Myself and a few other prostate cancer patients have a little support group helping each other. It would be great to hear more of your success story.
Dear friend, congratulations are your health improvements. I am aghast that you are being restricted from posting because of your positive results with alternative treatment of Fenben. What is the true narrative here? To offer help to people with prostate cancer with methods that have been proven to work? Or to only offer the system's conventional methods and keeping the truth in alternative protocols away from those who are earnestly seeking help? If this is true, I'm sure I will be banned in due time as well. I hope other members see this.
Brother, I have your email address and will contact you.
I found your post today about diet and Fenben. I recently started Fenben, DMSO and vit E Succinate after finding a post by Smedley M. Luck on Joe Tippens website. I would really like to speak with you with regard to your success. I tried to treat my PC for 10 years alternatively but eventually with a psa of 1008, and a Gleason score of 9 I was at the end of my life and so started Lupron and Zytiga. Fortunately that bought me a bit more than a year and then my PSA started rising from a low of .17. I got started on the Smedley protocol from Joe Tippens web page. My Zytiga got lost in the Covid blocked mail and I couldn't (actually chose) not to go back to Canada (from Barbados) and so now I am completely off Lupron/Zytiga and fully on Fenben, DMSO and Vit E Succinate. I am doing amazingly well. All my bone sensations have gone away. I have been restricted from posting on this website due to my Fenben posts. I would really appreciate emailing or speaking with you to learn more about what you did. My email address is ehyan@ehyan.com. I will be 65 in February. Myself and a few other prostate cancer patients have a little support group helping each other. It would be great to hear more of your success story.
It's almost impossible to be restricted from this site.... Just be respectful, and no soliciting. The people here only share their information and their brotherhood (and sometimes their humor)..... May your husband kill all those tiny bastards.....
If you want to take alternative meds, herbs, drink horse urine, whatever then go for it. But you are equally wrong to act as if your way is the only right approach to treating prostate cancer. If you have had success with your herbal methods and prayer, good for you but you may also kill someone with your so called advice. How would you feel if someone abandoned their medically approved protocol and then died because of YOUR advice?
I don’t think any of the above conversation asked of anyone to abandon their said protocol. I am aware some people do more then one protocol. And it’s everyone’s choice. We might not know the history of each individuals struggle or what they have tried that failed on both ends of this conversation. I know people that chemo didn’t work , my daughter being one of them, she died of medullablastoma And I have read and heard of others that Fenben didn’t cure their cancer. That being said, if Fenben has been around when my daughter was dying and all conventional medicines stopped working, you bet this Momma would have flown to the other side of the world to pick some up and try.
We all have choices, my husband has tried every conventional medicine and is still doing Chemo, but his cancer has spread through his entire body and the doctors have told him “it’s not too early for hospice”. This wonderful man of mine, father of 8, grandfather of 15 has decided after research done by 7 family members and himself, including a pharmacist family member, will start the Fenben protocol. His choice, his life, and we all stand behind him and support him in all his decisions. That does not mean he will stop Chemo or Lupron or exgeva, as everyone who struggles with cancer every day is different. But if he decides to stop conventional cancer meds, I’m behind him and will hold his hand on that too. So if I find out Horse Piss will give him a chance to live a better quality of life and longer life, I will research every different horse piss out there and give him the results of my research and again, let him choose!
"they should investigate and learn all there is to know about the latest advances in natural treatments and alternative treatments and use these extreme conventional treatments as a last resort!"
Direct quote from the above poster, who obviously is telling people to abandon their conventional medical treatments.
Listen I have my own disease that isnt PC but trust me, I would do anything to get better. But telling people to go against their doctor's advice and start taking herbs and whatnot is totally unethical, especially people still in the earlier phases of PC.
WOW! You are certainly entitled to your own beliefs, but come on now. You say ALL pharmaceutical products are toxic to the body. Well how about levothyroxine, which can be life saving to some folks. Doesn’t really seem to be toxic to me. Same goes for antihypertensives, cholesterol lowering meds, and in and on. All medications have side effects, but they are often an extension of the therapeutic effect of the drugs. Not toxic.
And then you say chlorine and/or sodium fluoride are the main ingredients of Prozac?? wtf? Where did you get these ideas? A quick search About chemical salts may clear this up. Please understand I am not attacking you in any way. I just take issue with some of your statements.
Read the responses. Consider the suggestions offered.
You might read about Dr. Ruth Heidrich. You might look at my responses to this type question. Some here will tell you that diet has little or no influence on your cancer. I will never tell you that a conventional treatment will not work. I believe that your doctors should be involved in whatever course you decide on. Their advice can be helpful especially if they are forward thinking. If you have a doctor that is "stuck" in the past with rigid beliefs and "tunnel vision", you will have to make a decision about a change in those who guide your care and treatment. Any treatment centers that want complete control of you are in, my opinion, to be avoided.
Look at one of my recent responses to a post about diet and supplements.
I have a friend whose father had prostate cancer. He was an IT guy at large company in Boston. He researched how to avoid cancer. He became a vegetarian and a few years after that a vegan. The IT job sort of evaporated leaving a sour taste in his mouth. He started a business buying and selling used exercise equipment. That is when I met him. My thoughts were along the lines of how can he be healthy? He is! There is a Vegan Group in our state that was getting together at one of the vegan restaurants once a month. He is member of his group. Some of the members, not all by any means, became vegans when told their cancers were terminal. He is impressed with their success against their disease by becoming vegans! Conventional medicine doesn't work for everyone and I doubt that becoming a vegan does either. You should know what your choices are and make the decision you are comfortable with. Conventional treatment is often enhanced by alternative, complementary means. Your doctors, all of them, need to know what supplements and complementary and alternative treatments you are using. We don't need any tragedies.
Some have very closed minds. Others have minds like a dried sponge which will suck up the good and the bad. Make choices based on your research, the advice of your doctors, maybe a doctor of naturopathy, perhaps an herbalist and if you are fortunate to have one in your area, a forward thinking doctor. I wouldn't denigrate a treatment or supplement unless it was harmful or dangerous when combined with other treatments. Sometimes hope, the precursor to the placebo effect is the last thing that can help. Why be so negative and destroy someone's hope? Dr. Ruth Heidrich is an example of that. When she became a vegan to save her life, she placed her faith in Dr. Kohn McDougall. Her husband met her efforts to stay alive and herself with criticism and scorn. She divorced him, continued her efforts to regain her health and in a year the metastases to her ribs disappeared. This may not be something everyone will be able to do, become a vegan, harness the mental and spiritual discipline needed. Just know that there are options.
Know that you should make your own decisions about your treatment, your diet, your supplements and life style. Also know that at any time you can modify those decisions. I have.
Dear friend, congratulations are your health improvements. I am aghast that you are being restricted from posting because of your positive results with alternative treatment of Fenben. What is the true narrative here? To offer help to people with prostate cancer with methods that have been proven to work? Or to only offer the system's conventional methods and keeping the truth in alternative protocols away from those who are earnestly seeking help? If this is true, I'm sure I will be banned in due time as well. I hope other members see this.
Brother, I have your email address and will contact you.
He did chemo and radiation at MD Anderson for lung cancer. Then he was enrolled in a clinical trial, in 2017. They don't state what drugs he was receiving in the clinical trial other than it was immunotherapy. At some point towards the end of the clinical trial he added in the dewormer and didn't tell his doctors about it.
Cookies and cream ice cream and whatever else you can find that still tastes good. I've seen all sorts of posts here on Fenben. Some were outright hilarious. So don't know what that tempest in a tea pot was all about. Some of these replies seem to be right out of Moby Dick. Did anyone ever read the whole book?
I read the whole book, Moby Dick. "Call me Ishmael". Ha. Ha. Sometimes I have thought of the obsessive search for a cure for advanced prostate cancer as the unattainable great white whale, Moby Dick. Other times, I have considered how Ishmael's survival at the very end by grabbing onto Queequeg's coffin bobbing up out of the whirlpool of the sinking ship can seem analogous to escaping death from advanced disease by some miraculous latest and greatest medical treatment that provides salvation in the nick of time.
Other times, I recall all that incredible "flensing" of the whale blubber in the novel. I wonder if my own carcass should perhaps be "flensed" a little to prevent a grease fire blow-up some day when my own ADT-enlarged remains are sent for a simple cremation. Ha. Ha. Ha. Ha?
I like it! Your literature informed analysis coupled with a morbid yet personal sense of humor. Have you been to the great cremation grounds of India, such as on the ghats of Varanasi on the banks of the Ganges? Cremation takes place continuously there 24/7/365 as it has for over 3,000 years, all lit from the same holy fire. It is really very beautiful. So much so that it actually extinguishes much of the fear of death. The opposite of the image of going down tethered to the great whale.
Call me impressed. If only Ahab had listened to Roy Scheider, "You're gonna need a bigger boat." I shall tip toe around the grease fire blow-up. Everyone is so sensitive these days. The world now reminds me of the priest in The Life of Brian, stoned to death for saying Jehovah.
UCSF has a general Diet Recommendations document in regards to Prostate Cancer. In general, I suspect that only a minority of older men would actually follow it 100%, and it may be a bit skewed in the direction of some "west coast San Francisco" menu items, but it might provide some ideas for modifying one's diet here and there in probably generally helpful directions.
One of the best things I've done in trying to keep the Androgen Deprivation Therapy (ADT) weight off was to improve upon my former general dietary rule from the earliest adult decades of my life, ... "Never eat anything bigger than your head". Ha. Ha. Ha. Ha. Ha.
I also cut red meat and eat as varied of a diet as possible, salads with 25 ingredients, veggie stews with 35 and am doing well with conventional treatment. Supplements D and B12 as confirmed deficient by blood test. A lot of intense excercise. Anybody that thinks Tall Allen is anything but an intelligent man offering a lot of information to anybody that asks is misguided IMO. I treasure all info on this site and would restrict name calling like above if I was I charge but never somebody's personal experience regardless if that is alternative or conventional. I also love the humor and emotional support given out daily.
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Interpretation - Stable or Growing PCA?
My Dad died... but not from PCa
Dad's advanced Gleason 9 PCa
PCa with Bone mets in femur 
PSA for PCa Awareness month
