Anxiety : Had my last PSA test 3 months... - Advanced Prostate...

Advanced Prostate Cancer

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Bodysculpture profile image
27 Replies

Had my last PSA test 3 months ago

Docataxal 6 infusions and 3 monthly hormone suppressant

My PSA when diagnosed was 13 .5 after chemo it came down to 1.54

We then moved on to radiotherapy to the prostrate

Getting my results next wednesday

Then having my PSA test done 1 week before I see my oncologist on the 2uth of october

I must say i feel amazing

My hair is growing like mad despite having my testosterone blocked my muscle mass came right back still strong

Question

Isn't my PSA test too far away ?

What can I hope for ?

Feeling very anxious and apprehensive

Driving Wonderwoman mad with questions lol

Then she repeats everything my oncologist said in her animated mocking the voice of my oncologist

You are doing very well

We believe you will benefit from radiotherapy

We think we can keep this at bay for quite some time

Its seems like a long time of my PSA not being monitored

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Bodysculpture
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27 Replies
Magnus1964 profile image
Magnus1964

You have to give everything a chance to work, otherwise you may be measuring a PSA bounce. That's the higher reading you get when Pca cells die they give off PSA.

Bodysculpture profile image
Bodysculpture in reply to Magnus1964

Thank you

Tall_Allen profile image
Tall_Allen

No need to have PSA sooner. PSA goes up during radiotherapy because of prostate cancer cells dying. I had my first PSA test 3 months after prostate radiation, which is typical.

Kaliber profile image
Kaliber

Seems like your oncologist is right. You are responding well to treatment and your physical attributes are strong ... it does seem that you will be able to keep on keeping on for a good ole long time . The fact that your oncologist is casual with your psa tests demonstrates a lot as well . ( I’m every 30 days and two weeks on some ). I think you can take that deep breath you have worked so hard for ....relax and chill for a while. You doink gud brother ... and it’s working for you.

Peace brother 🦋🌸🌻🌼🌈❤️❤️❤️👍👍

Bodysculpture profile image
Bodysculpture in reply to Kaliber

Thank you Kaliber

Bless

treedown profile image
treedown

I am on every 3 months, I did monthly during radiation and I saw a steady drop during that 9 weeks. I later learned here I should have waited for the radiation until I hit nadir but nothing I can do about that now. I got my most recent PSA test result yesterday and I am happy to say there's no change which is good. While I am not seeking upper body size I am also seeing increased fitness, mine is on a bike. I continue to see improvements in speed and distance. I monitor it closely and hope it gets better until if all goes as planned I get off the meds in 10/21. The hope is permanently off meds but even if it is for a period of time I will be looking forward to see what the return of T does for my times and strength. It would be the start of the cyclocross season if covid doesn't stop it next year as it did this year. So looking toward the future and enjoying each day as it comes. Hope your journey stays as positive as it has been up until now.

Bodysculpture profile image
Bodysculpture in reply to treedown

Wow

Improvements in speed is a clear indicator for recovery

Definately not as fast as I was before endurance was never my choice lol

Thank you Treedown

in reply to treedown

👏🏼👏🏼👏🏼👏🏼👏🏼

treedown profile image
treedown in reply to

Is that sarcastic clapping ? :)

in reply to treedown

No Sir ! It’s in full support of you 💪

Bodysculpture profile image
Bodysculpture in reply to

Well handled Whimpy lol

And thanks

ctarleton profile image
ctarleton

"Prostate Specific Anxiety" over PSA tests is nearly universal for most men in the beginning.

In my anecdotal experience (click profile name for details), if I had had PSA tests every 3 months and "rounded them off" (at least mentally) to the nearest whole number, it probably would have made little difference in my overall treatment options/decisions. As the months and years pass with relative stability most of the time, a 3 month PSA test interval most of the time can also keep one's calendar more clear for "better things" to do and to think about "in real life" than having 2 or 3 times more lab appointments and needle sticks. It's a trade-off. Keep up the discussions with your doctor.

Bodysculpture profile image
Bodysculpture in reply to ctarleton

Thank you

That's helpfull

in reply to Bodysculpture

Tri- monthly psa test is most common .

Bodysculpture profile image
Bodysculpture in reply to

So I gather

Thank you

treedown profile image
treedown in reply to ctarleton

Had my Dr appt last night and I finally agreed to do all test every 3 months which is what he wanted a while back but I wanted to monitor my bloodwork closer. I agreed to 3 months for everything and realized how freeing that felt after I said it.

Bodysculpture profile image
Bodysculpture in reply to treedown

Thank you

NecessarilySo profile image
NecessarilySo

I have gone through similar psa anxiety and have had it measured monthly as well as quarterly, even semiannually once. Looking back at it I feel that monthly was a bit unnecessary but certainly helps the anxiety a lot. I mean that is the best sign of what is happening as time goes on and it is the most important thing to know. We need to know if the cancer is progressing or not. PSA as I see it is a measure of the amount of prostate cancer in my body. I don't rely on it as 100 % accurate but I have to know what is going on with it. I do various self-applied dietary and other techniques that I want to know if they are effective. In eight years I have only managed to lower my PSA twice without hormone therapy. And those were relatively small decreases. But it helps to monitor frequently, I think monthly is best for me. Also I have metastasis, perhaps more concerning than your case.

Bodysculpture profile image
Bodysculpture in reply to NecessarilySo

Thanks for responding

I am still in the learning stage

So much seems to be hinged on the lower our PSA is the better our life expectancy

Mine is still 1.54 last test

I have undergone radiotherapy since then I am anxious to know what it would be now

I read a PSA of 0.2 or less is a good indicator for longer survival

Thanks again for your input it certainly helps

NecessarilySo profile image
NecessarilySo in reply to Bodysculpture

Tall_Allen already said it but to reiterate, any kind of stimulation can increase the PSA reading, including radiation , so you might expect the PSA to be higher after rad therapy, for a few months. I suppose that is why they wait after rad therapy. So you might consider that when you get your reading.

Bodysculpture profile image
Bodysculpture in reply to NecessarilySo

Thank you many others expressed the same sentiment

It really does bring me great relief

Bless

dadzone43 profile image
dadzone43

I am becoming a echo: PSA also stands for Permanent State of Anxiety. You do your immune system harm by obsessing over this number. You note many signs of improvement and good health. You see a gratifying fall in your PSA. Do you really want to face this anxiety more often?

Bodysculpture profile image
Bodysculpture in reply to dadzone43

No I certainly dont

Thank you very much it is becoming somewhat of an obsession

That's why I love this forum I knew I would get some help with this issue

I am gonna stop this right now

Had no idea it could cause me harm

Bless you dadzone43

COOP8 profile image
COOP8

After chemo my husband’s oncologist had us come in for PSA every 3 months, to coincide with his lupron injection. After the first rise it was monitored monthly. His oncologist always asked how he was feeling, and said that is just as important an indication to her as any bloodwork numbers.

Bodysculpture profile image
Bodysculpture in reply to COOP8

Thank you

Not giving in to the anxiety anymore its not therapeutic nor conducive to do so

Wishing you and your husband all the best

j-o-h-n profile image
j-o-h-n

** To play the video click on the name of the video on the top of the video **

This will cure your anxiety for a little while. Have a little dance with W.W......

youtube.com/watch?v=bEeaS6f...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 09/24/2020 5:45 PM DST

Bodysculpture profile image
Bodysculpture in reply to j-o-h-n

Always loves that song

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