I don't post much, but always follow your posts. I just had my labs done today and as usual I was suffering from pre-test PSA anxiety the past few days. I was needless to say delighted and feel very lucky that I am still undetectable. If somebody told me when I was DX'ed that I would still have an undetectable PSA level after 2 years let alone over 5, I would have thought that they were being over optimistic at best. Point is that it can be done. So for you newly diagnosed brothers, please know that you have a long life ahead of you..Still on monthly Firmagon injections and daily 50 MG of Casodex. I feel totally normal most days and exercise vigorously every other day. Repeat PSA in 4 months and Dr. told me that if I am still undetectable we can discuss a HT vacation.
Take care and most importantly be well
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It might be helping because it contains many polyphenols and resvesterol, I use grape seed powder to minimize the sugar intake and still get most of the benefits. Also, juice extracted pomegranade seed powder (Anardana) can help too. A good amount of turmeric, Ginger, Black pepper powder(pepperine), Cayenne pepper powder (capsaicin)
and of course one of the cruciferous veggy (cabbage, Brocolli, Cauliflower or Radishes)
I would like to increase my walking from 4 miles a day to 6 miles day...working on it !
Fantastico! I too am still flying under the radar ..3-15 will be my five year dx. The proof is in the pudding .Or in the poofs for you . Let’s go for another five ?🤣
I checked your previous posts, but didn't see if you still have your prostate and if you are having any specific treatment for your bone Mets, such as Xgeva. Also, where have you been treated?
Still have the prostate as my disease had spread to lower spine. Also on 6 month dose of Prolia to help with mild HT related bone density loss. Mets have cleared but we all know all too well the demon is just sleeping for the time being
Year later just wonder how your doing our historys are similiar..except ive been on lupron/erleada sinc 2/17....psa just hit back to back .1's...after <.02 for 3 yrs...so very familiar with psa stress it finally came...hopefully its a slow climb...
Congratulations and thank you for posting. I'm just starting my trek and while I appreciate all the posts and information, it's really nice to hear some positive news.
How long have you been taking casadex and was there any side effects, might have to do it in the future, any information is helpful. Did chemo in 2018, lupron every 3 months, psa was ,6, went to 4.1, then 3.9 and 3.6, waiting on blood work yesterday. Last month's scan was great, no disease progression and no new Mets.
I’ve been taking 50 mg Casodex for nearly 3 years along with Lupron and now monthly degarelix . May have increased my gynecomastia . The bicalutamide ( casodex ) strongly suspected to be the source of my peripheral neuropathy ( never had chemo ) but without confirmation or consensus amongst physicians at MSK NY . Just one case such as mine should not determine your decision to use it or not use it of course in consultation with your MD .
Thank you thank you! My husband just recently diagnosed with PSA of 623 and almost three months later his PSA 1.5. Thought he was beating down deaths door but your post give us some hope! Thank you so much for sharing!
He is responding very well considering how high it was.. Mine dropped to from 209 to1.2 after the first months and it slowly kept dropping until it reached undetectable 5 months later. Initially started with Firmagon and Casodex.. After 3 months while the PSA kept dropping, my doc took me off Casodex. Unfortunately that was a short vacation because without Casodex, it inched up again the next month so he put me back on Casodex and the month after that, it went to undetectable, where it remains to this point 5.2 years later. I initially rejected first line chemo because, after the first month into HT treatment my Circulating Tumor Cell blood work was at zero.
How old are you now? I’m 58 just got back from Cuba all inclusive, wine, rum, cervezas, snorkelling and tennis...I have not changed my alcohol diet and am PSA <0.008 26 months in.
Keep exercising and having fun and eating good food and ‘ healthy ‘ drinks.
Let's see now: Your Old Spice after shave lotion, The girls Blue Waltz perfume, Her lipstick, One Joint, McDonalds hamburger, A&W Root beer. Bayside Breeze Car freshener hanging from the windshield. That smell was like being in heaven....
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