With Mets to T3 and L2; PSA 32.4, I had my first injection of Lupron and then immediately enrolled in a six month chemotherapy and hormone therapy clinical trial 15 years ago. My last injection of Lupron was February 2010. The protocol developed by Dr. Robert Amato worked extremely well for me and eight others. Last month Glioblastoma took him too early. A very sad day for Kidney Cancer and Prostate Cancer research.
Congrats Gourd, definitely a great result, you’ve come a long way since your initial tx. Thanks for your previous posts about your chemo trial, which gives those considering CT a good data point. You were way ahead of the curve on early chemo. Cheers- T
I've researched Dr Amato's works, very interesting, wonder why his aggressive chemotherapy/ADT treatment didn't become mainstream. It's 15 years later, and now early chemo is proven to be effective with ADT!
I've already done 5 Taxotere infusions, one more in three weeks. PSA <0.02, mostly because my T is <3 ng/dL. Now if I can have your T and keep my PSA undetectable, in another words, the holy grail.
Dr Amato's life was amazing, totally believe life is a randomized occurrence...
His early chemo was accepted. However, his protocol required early detection and a strong body without co-morbidity as near as I can tell. All nine who were successful had that common trait. What I can not understand is that his protocol is now standard in treating breast cancer. Cancer of the prostate is very similar to that of breast cancer.....
I had similar results with 6 1/2 years of Eligard and bone mets. I have been off therapy for 1 1/2 years with my PSA 0.06 and my T is up to 47 now. I feel better every day. Thank you Dr. Amato.
Jim, great news. Note: after a year, my testosterone never really came back. Ranged, from 30 to 48. Then in 2012, we added 4 mgs of Androgel twice daily. The only problem: when I started Androgel was $180; now it is $540 (six month supply) I don’t necessarily blame the manufacturer, but the “Low T” commercials and doctors driving the price up so much that insurance did not want to cover a man and his maleness. Same thing happened to Viagra.
For two years, after Brachytherapy and IMRT, I took 12 mgs three times a week under my theory that it would force blood vessels to repair or renew in the areas destroyed by radiation. I was right - you have to have blood to make everything work. So, glad that Dr A and my Cardiologist allowed me to try as it made sense. But, insurance restrictions and expense has increased for all due to the “Low T’ guys; again leaving the medicinal guys screwed....
Maybe Trump will get the prices back in order. Thanks for your response. I can get off but it is a dry orgasm (nothing to clean up!). I want the T to come back slowly in case there is some cancer still in there. Thanks again,
GD, did anyone do a comparison of your treatment to that of Dr. Bob Liebowitz at Compassionate Oncology? On the surface, it sounds like there is some similarity.
My understanding is that are not close all, I never really investigated other protocols and just focused on me. First my total out of pocket over 15 years is less than $1000. Essentially, nine infusions of Adrimyacin alternating with nine infusions of Taxotere over a 180 day period; plus Estramine with Adrimyacin and Ketoconazole Taxotere; plus 30 mg of Prednisone daily during the 180 days. All this while continuing with a Lupron/Eligard injections. Pretty sure that he added high doses of Vitamin C. All of the above cause cancer cellular apoptosis, hitting cells that rapidly divide. Of course there was the obligatory before and after doses of Dexamethasone with infusions. The only other drug which I took for nausea was Zofran. Finally the trial dictated zero supplements........
My diet was normal except no milk products. Ate balanced meals. My employer was great as I did not work on infusion day and the day after. For next two days, about four hours a day. Pretty much about seven hours for the next two days.
Good for you!!! Keep positive thoughts and grab that brass ring! One suggestion. Stay on top of Lupron studies, eat well and please accept a big hug from ME❣️
Ziplock, thanks for the good thoughts and suggestion. I haven't taken any medication, including ADT, since February 2010. I try to stay current through this group just in case.
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