Latest PSA

[JWPMP]

Jim's latest PSA 0.1

Dr Mohamad says we'll soon be undetectable.

I know a fast drop isn't always good news, but he started Casodex in December, Lupron (4 month) January, and Abiraterone March. So hoping a six month to 0.1 is actually good news.

I'm happy for the time being.

Should start Prostate Radiation soon, as his CT scan was June 25th.

They said his intestines "looked big", might have to do another scan, but so far no word. Thinking his mesh patches and scar tissue make his intestines look different than most.

Anyway, going to take our little victories where we can...

Thank you all

[MateoBeach]

All as it should be. Full steam ahead. 👍🏼👍🏼🙏🏻💕

[Magnus1964]

It seems like he is going through a lot of drugs fast Is his doctor stopping these drugs?

[JWPMP in reply to Magnus1964]

He started Casodex middle of Dec 2020 in preparation (to suppress testosterone flare) for his first, four month lupron shot Jan 2021. Discontinued Casodex end of Jan 2021. Started Abiraterone March 2021. The plan was, he will be on Abiraterone &

4-month Lupron shot for 2 years.

I'm sure it's more permanent now though.

[Magnus1964 in reply to JWPMP]

Why is the doctor giving a time limit to zytiga? If a drug is working, why stop?

[JWPMP in reply to Magnus1964]

The two years was when they believed he was curable. In May it was determined he is not, so probably stay on this track indefinitely.

[treedown in reply to JWPMP]

Only a few differences but I am on the same treatment and my disease presented it in a similar manner. My decrease from PSA 110 to undetectable took 6 months. My PSA had dropped like 99.5% by month 3. I read one paper that said longer drop to nadir better unless the drop was above 95% or something like that. I stopped researching after that as I wanted a win and was afraid I would find something to contradict that. Not much we can do about it anyway other than have more anxiety.Best of luck to you both.

[JWPMP in reply to treedown]

Thank you for that...I tend to let my anxiety run off. Been working on that, especially since it is unacceptable to allow my anxiety to negatively impact my husband who's actually fighting the fight...I do keep my anxiety completely to myself so this forum is a life saver for me!!You're correct , too much research can push all the buttons. There are statistics for every angle imaginable, so I choose to take a victory where we can and appreciate the fact it's good for now. Jim's doctor is pleased, so I'll go with that.Hope you stay stable for many many years, and since your Gleason 7 seems like you have excellent odds of good results. Thank you again

[JWPMP in reply to treedown]

I see you also had extensive RT, wonderful. Jim's RT will be VERY limited due to the fact he had radiation in 1992. So I fear his remission may not last as long as most, but again, just need to let it go...

[treedown in reply to JWPMP]

What was it for in 1992 ? I don't think any of us know what will happen in the future though some may have a better handle on it than others. The reality is we are all a blood test or scan away from the storm. My moto remains live one day at a time, so today and what is happening is all that matters when it comes to PC. Not always easy but important for me to try very hard to keep it that way.

[JWPMP in reply to treedown]

What Excellent advice. He had classic seminoma (testicular cancer) and one testicle removed.

His GP did something prior to diagnosis that was not good, therefore he had RT from below the sternum to upper thigh. The RO says if they try to zap the couple of extrapelvic lymph nodes there would be too much toxicity. He also had a titanium plate in his pelvis from a break in 2005, which they said would make RT to the pelvic bed very complicated. And he has 2 or 3 pelvic nodes they cannot radiate either due to them being in the prior RT area. He has a single suspect bone met on his hip adjacent to his metal hip (replaced in 2011) that they do plan to hit with SBRT. So we'll see how things go.

Bridges to cross when the time comes.

Thanks for the good advice...

[treedown in reply to JWPMP]

I think its all coming back to me now, we have corresponded in the past haven't we? Here's to a excellent response to his treatment! I will look forward to updates.

[JWPMP in reply to treedown]

Lol, now that you mention it I think we have...Thank you much!