Erleada Update

[MJCA]

I have been on Erleada + Lupron + Xgeva since January 2019.

My PSA has dropped from 13.4 to 1.4.

I have had very bad nausea for 7 months.

Nothing helped, phenegran, compazine or zofran.

I also had gastric bypass 4 years ago. Protein intake was very important.

I decided to change my diet. I have cut out all meat, poultry AND sugar. I eat fish, shellfish, fruit, eggs and dairy. I barely have ANY nausea any longer.

YAY

Just wanted to share!

[Hidden]

Great changes friend ..👏

[Hidden]

The Rasta routine works for me . I wake up and smoke a jay as much as possible .. good luck MJCA

[MJCA in reply to Hidden]

Oh hell. I do that too. Does absolutely nothing for the nausea, but it does help with my attitude!

[Hidden in reply to MJCA]

Maybe you need the strong Thc oil . I do that too.

[Hidden]

As I was reading your post I said "YAY" just before I read your own "YAY". Being your own advocate is very important! Good luck.

[MJCA in reply to Hidden]

Hi Romans - Being single and an only child I have learned I need to be hyper sensitive about what transpires. I do hate doctors. In January I thought I had bad gas, ended up having emergency surgery. 😉

[Hidden in reply to MJCA]

I’m glad you bounced back from that one ..

[AlanMeyer]

"very bad nausea for 7 months" !!!

That must have been hell! It's terrific that you have conquered this problem and without drugs!

You are an inspiration.

Best of luck.

Alan

[MJCA in reply to AlanMeyer]

Thanks. There are many others here that are much more inspirational than me! Sometimes the docs don't know everything!!

[Idontwant2]

that's great.... hope things continue to be positive for you.... I only had one six month shot of eligard /lupron.... I hated it's effects and stopped treatment before the next round.... I have no idea what my psa is.... haven't been tested since stopping treatment so I can't say how effective the shot was..... thank you for sharing your good news...

[MJCA in reply to Idontwant2]

Hi

If you were administered both meds, you can’t just stop. You can’t be like an ostrich and put your head in the sand.

I tried to as well. But trust me, metastasis is worse - a lot worse. This is my 5th round of Lupron. Now it is in conjunction with Erleada. Please reconsider and take care of yourself. I am not trying to be mean or rude. But, please, you must look at the whole picture.

[Hidden]

Hi...I’m late to this post...I’ve been on Erleada since March 2018. I understand the nausea. For me it was the sugar. I stopped it cold turkey, and I’m much better. Been through almost all the side effects, including the falling down