I have been on everything. Have at PC for 17 years and am now 86. Psa is
up to 84 and would still like to buy some time without compromising quality of life. Never had Chemo Onc. thinks I am not strong enough for it. So he is trying Erleada. Does anyone know anything about it- side effects and whether it will lower my PSA. I have had extandi, zitiga, casodex, radium treatments, etc. but he says this is worth a try.
Is there a chance this might help?
Wondering why your doctor thinks you are not "strong enough" for chemo. What does that mean?
The chemotherapies for prostate cancer are not that difficult for most. I've done Docetaxel and found it tolerable. Many say Cabazitaxel is easier.
If you've already had Xtandi, Zytiga and Casodex I'd say Erleada would be unlikely to work.
I second Nalakrats on getting gene mapping to see if you have a treatable mutation.
BTW, my dad had chemotherapy for his PCa at 86 and was fine.
Lu-177?
So what makes you think you have to do a lot more of anything anyway ? You are 86 and seemingly going pretty strong right now. My friend Bussman , Urang on this group , has been DX’ed over 22years now and ran out of treatments several years ago. His psa has gone from low, to the mid 250s then to beyond 500 nowadays but he is still taking a licking and still ticking with no expectations of checking out anytime soon. Bussman develops places where has to get radiation or an occasional surgery to kill an offending metastasis or fix a bone ... but there is no reason not to expect he can go on for a number of more years.
The point is that , even without additional treatments , you will probably hang on for a number of additional years .... its highly likely you have already beaten PCa because you are statistically more likely to pass from natural causes at your age before the cancer can take you. You just have to try to keep yourself comfortable and enjoy your natural life as it is. It feels like you would be pushing for something you already have.
Those are just my thoughts , your mileage will vary ...
Peace brother 💪💪💪✌️✌️✌️
You forgot.....Maybe too much sex.... will get him in the end...........
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 06/02/2020 9:58 PM DST
Yayahahahaya. Not feeling real perky right now ... Zometa hammer for a few days, got my monthly infusion yesterday, “ good one “ this time. Backatcha in a couple days buddy. 💪💪💪✌️✌️✌️
Sorry to hear that... I'll try to perk you up....
Two friends run into each other after not seeing one another for 43 years...They both tip their hats when seeing each other. Harold notices that Stanley is bald and has a hole in his head with a lit candle pertruding from it... So Harold says to Stanley..."so what else is new?"........ (Feel better and get perky real soon)....
Good Luck, Good Health and Good Humor.
j-o-h-n Wednesday 06/03/2020 2:59 PM DST
Clearly Stanley is a little light headed .... yayahahahaya thanks for the cheer up buddy. Preciate it mucho.
I know how important these infusions are, .....and some are worse than others ( ? Ha! ) , first week of every month is an adventure to say the least.
I’m two full days in , hopefully only two or three more days of the “ pain train “ remains. I hate for my wife to see me like this tho .... The beauty is that sometimes we become complacent with ourselves and our health when we are doing relatively well experiencing stage 4 cancer....... a ride on the Zometa pain train will refresh my appreciation for life considerably yayahahahaya.
🐕🦺 💩🔨 👀☹️
💪💪💪✌️✌️✌️
You said it Bro.... It's like driving by a hospital without even thinking about the poor bastards suffering in there...I guess it's human nature to forget your health/pain when you're healthy...c'est la vie.... keep smiling (didn't think of light headed)...
Good Luck, Good Health and Good Humor.
j-o-h-n Wednesday 06/03/2020 5:40 PM DST
Congratulations on your 17 years with Pca. I have been at this 27 years and I have not had chemotherapy yet. Erleada is another androgen deprivation drug. It's generic name is amplitude. It is in with the class of drugs like zytiga, xtandi, casodex, etc. All of these drugs work in a slightly different way.
I have gone through all of these drugs too, and would be interested to see how you fair with Erleada should you go that path.
Good luck and keep up the good fight.
Sounds like you are doing well after 17 years fighting the battle.
Wondering if you have considered Estrogen patches?
Low stress easy to use and for me has taken PA from 24 to remission level of <.008 over a three year period.
I'm on Erleada at the moment. Was put on it two months ago to tag team with Eligard. My PSA went from 3.4 to 0.4 in that short time period due to Erleada. I reckon it'll get even lower in the months to come. I'm 64 and the side effects are minor but include a slight small rash for a few days, lower white blood cell count and higher blood pressure which we're monitoring to see where it goes. I added the apalutamide/Erleada instead of going through chemo due to the pandemic. Both lower white blood cell counts but I reckoned that Erleada would do so to a lesser degree than docetaxel. Quite frankly, I'm thrilled with the results so far. EVERYTHING that fights cancer with a bang has side effects.
Wow thanks so much, that is really encouraging! Good luck.
Erleada without ADT?
New treatment after Erleada. 
Erleada and Dizziness 
Erleada stomach issues 
