Tumor Not Shrinking

[gleason9guy]

What was know formerly as my prostate gland is now a high grade tumor, Gleason 9, T3-T4. Following Taxotere, HDR Brachy therapy, direct beam, Lupron, and Zytiga, the tumor doesn't appear to be shrinking. My PSA has been barely detectable, but now comes some pretty intense pains in the hips, legs, back, ribcage, stomach, and ankles. This pain is fairly constant. I'm having to double up on pain meds to get through. Anyone like to venture a guess as to what's going on here?

[GP24]

The pain is probably caused by bone mets. A bone scan should make these visible. A few high risk tumors do progress while expressing very low or no PSA. You need an excellent MO now.

Allan posted these links to treat bone mets:

healthunlocked.com/advanced....

[gleason9guy in reply to GP24]

Thank you for the reply!

[Tall_Allen]

What did your bone scan/CT show?

[gleason9guy in reply to Tall_Allen]

Alan, the most recent bone scan was two years ago, at the beginning of treatment.

FINDINGS: Normal radiotracer activity is present in both kidneys and

the soft tissues. A focus of abnormal radiotracer activity is present

in the cervical spine on the right. Degenerative uptake is present in

the cervical, thoracic, and lumbar spine. Degenerative periarticular

activity is present at the shoulders and the base of both thumbs.

IMPRESSION

IMPRESSION:

1. Abnormal focus of radiotracer activity in the cervical spine on the

right may be degenerative, however, MRI C-spine with and without

contrast recommended.

2. Degenerative uptake in the cervical, thoracic, and lumbar spine,

both shoulders, and the base of both thumbs.

Scott

[Tall_Allen in reply to gleason9guy]

Probably time for a new one.

[gleason9guy in reply to Tall_Allen]

Good advice. Thanks!

[monte1111]

I have extensive bone mets, but at 69 am beginning to find most of my pains are arthritic and degenerative discs issues. Just an extra added attraction. Hope you can sort it all out.

[gleason9guy in reply to monte1111]

Me too. I have some degenerative issues, as well. But the consistent uptick in pain is concerning. Probably time to seek some new scans!

[Kaliber in reply to gleason9guy]

I was having some disk pain and asked my mo about it . He sad it was the same thing. I asked him for a second opinion .

He said ok ... and you’re ugly too.