Anyone dealing with sarcomatoid strain?

[ewhite999]

Just found out my prostate cancer has morphed into the rarest form, sarcomatoid. The good news just keeps on coming! Anyone else dealing with this one? Wondering about treatment options. Next step is pep scan and potentially stopping zytiga and doing more chemo.

[Tall_Allen]

That sucks! I believe surgery is the standard of care, followed by chemo and/or radiation. I know they try non-traditional kinds of chemo for it, like doxorubicin and ifosfamide. It may be difficult finding an oncologist with experience - maybe someone at Johns Hopkins or Memorial Sloan Kettering.

[Shooter1]

I've found that surprising your doctors and rare isn't good. My urologist and my MO had never seen what I have, but treatment plan has worked. Best of luck to you.