Hi all, this is my first post on this site, so I will offer a little background on my experience with prostate cancer.
I was diagnosed in 2016 with a 4+3 Gleason 7. I was 53 yrs old at the time. I opted for RP surgery and received not such good news after pathology was done. 1/4 of the prostate was consumed with grade 5 cancer that had already spread to several near by lymph nodes and some surrounding tissues (no bone mets on last PET scan, but that was 1 1/2 year ago). Not sure how they missed the high grade cancer in the biopsy, but they did. PSA at time of surgery was 15, and after surgery it was just under 12. I immediately started ADT with Eligard and Firmagon injections and a short stint on Casodex pills. PSA immediately dropped, but never stabilized, and bounced around from a low of .05 to 2.95. Now after 20 months on ADT, I have become castrate resistant with a PSA doubling time of 6 weeks. Just started Xtandi, but have only been on it for a week, so no blood work yet. PSA when I started Xtandi was just under 2 (don't recall exact number). I understand that 2 is a low PSA number, but I am very concerned about the rapid doubling time and the fact its grade 5 cancer that is metastatic, and now castrate resistant. My cancer Urologist seems to think he can keep it in check for several years, so Im wondering if I am more worried than I should be.