Hello all. New to posting but been actively reading through site for a while.
My husband -61- was diagnosed January 11/18 with Stage 4 PCa, progress in 2 pelvic lymph nodes and metastasis to rib and hip. Extremely aggressive and advanced. Timeline..less than a year....PSA was 34 but with growth of prostate an emergency TURP was performed to be able to pee. PSA jumped to 50 thereafter. MO did not sugar coat anything but gave some optimism that 18 months could be realistic depending on how body took treatment.
Started with double dose of Firmagon. PSA test week and a half after dropped to 10.9. Started Zytiga with 5mg Prednisone. Three weeks later PSA 1.9. Started Lupron Depot (3 month) and have completed 2 so far. PSA dropped to 1.2 but slight bounce up to 1.9 last month.
Worst part so far was problems after surgery with incontinence kidney stones and possibility of cancer spread to bladder and kidney but last weeks ultrasound came back negative with excellent kidney function. Last weeks CT scan shows decrease in lymph nodes but inconclusive on mets to bones with “multiple sites”
We, like all of you here, completely shocked, scared and overwhelmed. Decided that we were going to fight the fight and do whatever is on our bucket list.
Hubby feels all the side effects like unbearable hot flashes and tiredness but looks like that is to be expected.
He currently has been Bathtub racing (small high speed boats) through summer and was featured in our local paper with his story of fighting PCa as well as high level hockey 2 times a week and works 6 days a week as we are self employed.
We look forward to many more months/years together while treatment seems to be working.
Sorry for long post but glad to have found this site.
Keep fighting the fight!