2 years since robotic radical prostec... - Advanced Prostate...

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2 years since robotic radical prostectomy. Dr Lowe portland or. Constant battle with incontinence. Until now!.

Costarica1961
Costarica1961
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I have dealt with nightly incontinence despite oxybitnin and flomax. I have conducted a very interesting experiment with my cpap machine, when I sleep with it on 99% of the time it's a bone dry night, when I go to sleep and forget or just go to sleep without putting it on, its guaranteed 100% of the time i have a waterworks display in my bed , it's become very simple to wear my sleep mask or wake up soaked. Has anybody else experienced this. I mean it's amazing 16 nights without my mask equals 16 wet nights.

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arete1105

Trying to find a logical connection- with the Cpap maybe you are too far "under" to generate a signal to pee. You would appear to need the Cpap to get quality sleep. Maybe restless sleep is too close to the external stimulants needed for the desire to pee.

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Costarica1961

What's flawed with that theory is I do get a signal, because I awake, and go pee. Through out the night. I believe my sleep is more restful and less herky jerky, so maybe it's more of a deep sleep, perhaps more meaningul. I know deep sleep would make you believe you are not waking for anything. Deep on a different level. Thank you for your input.

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jimreilly

this is really interesting! I don't have a CPAP but I do think there may be some connection (based on my somewhat different experience after an RP) with restless sleep and incontinence

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I am scheduled for robotic surgery Nov 14. I have been using a CPAP machine for the past 2 years, and have been considering asking my Dr to get off it since I have been on a diet and have lost 27 lbs so far. I had been told that my excess weight contributed to my need for the machine. Now I am having second thoughts based on your experience. I have been getting avge 7 hours of uninterrupted sleep without having to go to the bathroom.

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MichaelDD

Hoping..since you have your surgery in about 2 plus months you are a lot like I was when I had my robotic surgery. I was diagnosed in March and had surgery in June 2016. I'm just wanting to know if anybody told you about Kegel exercises? I did those for the two and a half months before my surgery. I had my surgery and came home with the catheter. 7 days Later I had the catheter removed. From the moment it was removed I kept waiting for something to go wrong. Wore a diaper home thinking I was going to drip and drop everywhere. Nothing. Went to bed with just my underwear that night. Since then maybe just maybe I'll get a drip but that's it. Can't say that it was the kegels. But I still have that sphincter that I can draw in and out because of the Kegel. just throwing it out there that maybe you might want to do those two or three times a day till your surgery. Might help with the incontinence (or NO incontinence!) Best of luck to you on your journey.

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HopingForTheBest1

Thanks, I will definitely start kegel exercises. I am currently also on hormone therapy with Eligard, Zytiga & Prednisone, I will be getting Xgeva in addition. I am in a clinical trial that is researching effectiveness of surgery with standard of care hormone therapy.

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Costarica1961

No you were better than I about kegels no I didn't do daily. Maybe paying for it. Now , having to depend on a machine to keep me dry

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Magnus1964

Have our doctor prescribe imipramine. However, I am not sure how a Cpac would interact with it.

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j-o-h-n

Could be you're putting the Cpac over the wrong head.

Good luck and Good Health.

j-o-h-n Friday 08/17/2018 8:23 PM EDT

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Costarica1961

Funny, my wife would noticed that. I hope

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