I have been receiving Lupron shots every three months and taking Xtandi daily for a little more than a year. This follows a RALP and 36 days of radiation, all parts of my doctors’ kitchen sink strategy.
No doubt there is a lot going on in my body. One of the most persistent side effects, however, has been dreams. I dream every night. Strange and vivid dreams. They continue through the night, sometimes after waking up or getting up to go to the bathroom. I even dream when I nap for the tiniest while.
They aren’t scary (anymore, anyway) or particularly insightful (I don’t think). But I wonder if the dreaming sleep I am getting is restful; I am tired all the time. Of course, that’s another side effect of ADT.
Has anyone else had an experience like this? Any insight from doctors? Mine have been dismissive. Thoughts?
Aloha.
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I have been on xtandi about a month and there have been more dreams.
If you wear a fitbit tracker (I use a Charge 5) it will give you a sleep score. I find it to be pretty indicative of how well i slept. If i get 65 or above i feel ok the next day. Below 65 i know i did not sleep well.
Apple Watch also has sleep scores but their battery life stinks and are way more expensive than necessary if all you want is tracking and not smart watch features.
My fitbit only needs a charge once a week for like 30 minutes.
I've been on Prostap and Xtandi about 8 months and I also have vivid dreams most nights. I'm a light sleeper so often wake during a dream which is why I remember them. I've always had lots of dreams but I think I remember more since being on the drugs.
I'm on Orgovyx a little over a year and a half. I have huge hot flashes still at night, which take a lot out of me. I do dream most always, and I wake up exhausted. However it wears off within an hour or so. I only occasionally need a nap. Certainly they gave me somebody else's body when I began this therapy, and it takes several times more effort to do things I could before, but so far it's working, and I Praise my Lord daily for life, and answered prayer.
40mg horse pills. I admit I have only taken 3 a day sometimes when they mess with me physically. They messed with my stomach something fierce. I had to double up on Prevacid to survive.
sounds like one of the better things that happen with this fine disease we have. Make a buck on it and write a book or a screen,play. I can see many view on a utube channel in your future..
I am on Orgovyx. I have very vivid bad dreams , (being shot,followed, estranged, nighttime alleyways, ) to the point that I am yelling out loud...and waking my wife.. a pleasant gift from the big O!
Erleada here and I have vivid dreams, some good, others not so much. I track my sleep as well and focus on my "quality" hours and deep sleep and to your wonderment, at least for me, the answer is no. I come right out of a dream and wake up to use the bathroom. My app shows I'm awake in that time period. I go back to sleep. When I analyze my sleep the next day, I see that my body was in "light sleep" while dreaming, not REM as one would prefer. Can't say this is always the case though.
I had to add melatonin to get my vivid dreams, but wow. I guess since i am 'alive but not living' during the daytime, my dreams are trying to make up for it. Intense and real. the other night i dreamed i stepped on one of those carpet tack strips, and several nails got stuck in my foot. the nails became 16 penny nails, heads stuck inside my foot, the rest of the nail sticking out. no one would take me to the doctor, but they took me all over the place, and i hobbled along up stairs, down sidewalks, etc. i woke up to go to the bathroom and the dream was so real that i carefully lifted up the sheet so i wouldn't catch those nails on it, and hobbled halfway to the bathroom before realizing i didnt have to. colors, characters, feelings, so amazingly intense. i wish i had time to sleep more because those dreams are so incredible. the only thing that never makes an appearance in my dreams anymore is sex. it has been totally removed from my life, sleeping or awake. i cant even imagine a good sex fantasy anymore, and the memories of having sex are slowly fading too. never thought that would happen.
I definitely had that recently after restarting HT but they seemed to have gone away. Mine where followed by a sense of doom throughout the day. Sorry to hear yours are still going that long and hope mine don't come back.
initially, my dreams were scary and negative, and I did dread going to sleep some/many nights. Now, they are much more neutral and just weird. Regardless of the content, which I agree can be therapeutic and even a blessing, I wake up tired some days and wonder if they represent deep or actual restful sleep.
Clearly the being tired is the better issue. I agree with others a smart watch might be able to answer that question for you to some degree. I hope you find an answer.
I have a persistent dream that I look all over for a toilet and never find one...finally waking up, and I go to the bathroom. It's so strange, as if I am the only one in the world that needs to find a toilet. Thank goodness for toilets! In reality they can be hard to find.
I have been on Eligard and aberaterone for over a year now. I have noticed my dreams have been more vivid and intense. I often have dreams that I am peeing just before I wake up to pee.
Yep, I’m on Degaralix and Enzalutamide. Also on lowish dose morphine. I can sleep 12 hours though get woken by hip & knee pain and hot flushes. I wear an Apple Watch with the Sleep app. Shows that my sleep patterns have shifted to more REM sleep and less deep sleep. Dreams very odd. Often feels that I know I’m dreaming and find myself laughing at some of the absurdity. Some feel some real insights and in dream, I remind myself to revisit it but on waking, nothing. Very rarely recall any detail. Feeling lucky that I sleep and can have a laugh.
I too take Lupron - Xtandi ….. but I also take medium level opiates several times a day. Opiates are famous for vivid , sometimes erotic, dreams . Between all three of those dream makers , it’s hard to know which produces the most dream states ….. probably the opiates. I sleep on a apap breathing machine nightly, so I know I get excellent sleep ( usually AHI <.6 or less, a dangerous 87 without the machine ). For me , even with taking Lupron Xtandi Opiates dream makers , I still get great, better than a baby, quality sleep nightly.
I'm glad someone wrote about this. I'm on Lupron/Abiraterone/prednisone, and I dream constantly. They are never nightmares, but I'm always solving a problem of some sort, all night long.
I talked to my doctors, and they said to try melatonin, OTC. Then I tried Trazodone. Neither of them stopped the dreaming.
I'm beginning my eighth month, and it seems like the dreams are not as persistent. I really don't want to be taking sleep medicines if I don't need to, so I'm encouraged by the dream slowdown.
My dreams have been very vivid and very frequent. Seems like every time I fell asleep, I dreamt. Even naps. I’m not sure they have mellowed so much as I have become accustomed to them after nearly two years. (I am in the home stretch of my treatments.) I don’t mind them so much any more. I have mostly been interested to know if it’s a legit side efffect or something going on in my brain, maybe more related to me processing having cancer. No doubt there is a lot to process.
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