Not the news we were praying for😕 my fathers CT scan after 3 rounds of Jevtana and carboplatin to treat NEPC in the lymph nodes, we were hoping that the scans show shrinkage of nodes. Instead the CT scan showed multiple Mets to spine and pelvic bones(all new). His lymph nodes are somewhat stable and have only grown minimally and no new nodes.. again I guess that the chemo is keeping it from an explosion of Mets but not really taking it away.
His MO is notable especially for her research in prostate Cancer. But... she said his case “unusual”. What does that mean? I asked her about what are the options, she quickly mentioned immunotherapy, CAR-T, PARP inhibitors, and then keytruda. But first before we start I asked if a biopsy can be done to check his genes instead of using tissue from his is prostatectomy in 2014. I don’t understand why she doesn’t recommend these things and stick to a plan.. I feel rushed with her appointment and we are asking “too many questions” she even mentioned that she missed a phone meeting. I am beginning to want a second opinion on what steps to take next. I am not second-guessing her treatment plan but I feel like her treatment plan starts when were sitting there in the office asking her all of these questions. I don’t feel that she has a plan for my father. At end of her appointment she said that we would schedule a biopsy send it in for gene testing and then possibly start iimmunotherapywith keytruda if his cells show instability. Mention qualifying for the use of this for prostate cancer. What are your recommendations we live in Los Angeles and prefer to stay out here. Dr. Sholz not except Medicare or Medi-Cal even cash payments for a consultation is not excepted. I’m looking for a second opinion and possibly if the treatment plan is more define then we might change our MO. We just need to find somebody that will except Medicare Medi-Cal and that those of you out there have had experience and definitely recommend. I want to reach out to all of you and thank you so much for all of your input. My prayers are with each and everyone of you and your caregivers,wives, and children.🙏🏻👍🏻
My fathers latest results are-
Chromogranin did decrease from 409 to 385 but PSA increased from 18.3 to 21.6. So chemo is keeping it stable kind of??? Not sure really...