Advice on Supplements needed - Advanced Prostate...

Advanced Prostate Cancer

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Advice on Supplements needed

Armywifedublin profile image
8 Replies

Do not know where to order the Modified Citrus Pectin from also curcumin and any other supplements for my husband. Please advise. I wish I could just find a list and amount without having to dig. This is so overwhelming. From what I’m reading I also believe my husband has the ductal form since he has the adenocarcinoma and also the cribrifrom was found.. tonight my husbands surgeon informed him he was doing genetic testing since his PSA before surgery was 3.2 and to see if radiation would work.. ok to me this does not sound good at all. And as I stated earlier only 20 % of prostate was effected but 3 out of 6 nodes left pelvic region were positive. As of now we go back on Feb 21 to Cleveland to find out the PSA and see his surgeon. But we are heading for a sec opinion to Memorial Sloan Kettering on the 19th to see Dr Davila, my husband is 4weeks out of surgery.

Very concerned since we are not on any treatments yet.

Please advise on names of supplements where to buy and dosage... so far I have Curcumin, modified Citrus Pectin, Aspirin, Vitamin D, metformin, green tea, apricot kernels?.. please please advise.

Stephanie

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8 Replies

Is there a Cancer Treatment Center of America nearby? You can get the pectin you are looking for there. All of these centers have a pharmacy on site and you can probably get everything you need there. Good luck. I know it's terrifying. I've recently been diagnosed myself. However, if it's any comfort, your husbands diagnosis does not sound too bad. A pre-surgical PSA of 3.2 is not bad and 20% involvement is encouraging too. If the cancer is contained within the prostate, your husband will essentially be cured after the surgery. God bless.

Armywifedublin profile image
Armywifedublin in reply to

I only wish it was contained:(. It is in the lymph nodes and Cribriform architecture was noted which also is not good.. we went in thinking s s was told not to worry with his PSA 3.2 and Gleason prior to surgery was a 6 it would be contained. The surgeon himself was 99 %.

We then got the dreaded call from him. And told my husband he was shocked as we were.

And gave him the diagnosis of Advanced Prostrate Cancer. More worrying is the call tonight stating he ordered genetic test on him.

I’m so sorry your going through this. I just wish for a cure soon for everyone on here..

in reply toArmywifedublin

There are potential cures in the pipelines. Fight it hard and fast and don't lose hope. You're found a great site here with great people who will offer you support, encouragement, and advice.

dockam profile image
dockam

Hey, here is a link from Amazon: amazon.com/New-Chapter-Turm...

medsci.org/v12p0063.htm

amazon.com/Berberine-Comple...

news.utexas.edu/2017/06/06/...

amazon.com/Labrada-Nutritio...

amazon.com/dp/B01CD3UVAK?aa...

GL7(4+3), PSA at 840, 15 Chemos, 30months of ADT(hormone therapy), fasting 18 hrs/day. Completed 21 marathons post-PCa DX

Randy

ronnie1943 profile image
ronnie1943

Hi, my name is Lynn. My husband also has lymph node involvement. We are waiting for biopsy results to come back to see what treatment is next?? The waiting is terrible. It is scary. I know what you are going through. There are times I have such panic attacks. I also have been giving my husband all the supplements you are for nine years now, I added saffron. Most supplements I get from a health food store.Hang in there, there is so much they can do today, new treatments are coming our way everyday.Nine years ago, Sam's PSA was 483 at age65,treatment aggressive at that time. His cancer came back just this past year with a vengeance, long story... Sam is now 74 young.

Keep fighting this beast and please keep us posted.

Best wishes and hugs!

Sincerely, Lynn Pa.

Armywifedublin profile image
Armywifedublin

Thank you.. praying for your husband and all the men on this site.. I havnt started supplements yet just trying to learn which to start now!!

Kamilekamile profile image
Kamilekamile

Dear stephany,

Although we are using some supplements i am not long enough here to give you any experience.

My husband has been dx in august 2017. The psa was 12.. just like you we have got the bad news that the lymph node involvement pahology of davinci Rp. I went through all the things you are going through now.

I do alot of readings since than. I dont know their names i am sorry but there are people here with ductal cancer lives for years.

Be optimistic. Believe you will beat this beast.

My prayers for you.

Kamile

Spinel_Cutter profile image
Spinel_Cutter

PectaSol Modified Citrus Pectin – 551g Lime Powder, Amazon, 551grams. $99. Three scoops a day, so about 37 days worth. The $99 is with an outo-delivery. I think it tastes great. It does NOT like to mix with water. I take a water bottle, with about 2” of water in it, sift the pectin slowly so it does not clump, the shake vigorously. It dissolves over 5 minutes or so.

Curcumin. Beware of “blends.” Let me explain. I take a 1,000 lbs barrel of cheap turmeric, now I add one teaspoon to the entire barrel. I now have a “blend.” (Of worthless turmeric)

Beware of "serving." Read the bottles! For instance one brand touts "500 milligrams per serving," but, a serving is two, or 5 capsules. Do the math.

Beware of micrograms, I see a lot of this: "2,000 mcg or 2,000mcg" sounds impressive but in reality 2,000mcg = 2 milligrams. Don't be fooled, and so very many are.

Also beware of Amazon weirdness. I once reviewed with a one-star. The seller touted 2,000 milligrams in a very small capsule--impossible. That capsule would hold at most 250 millgrams, a 2,000 milligrams pill of that substance would be huge. Result of my 1-star review: Banned for life. Thanks Amazon. Still most substances are real.

That being said I buy, off Amazon: 98% Pure Curcumin Powder (98% Curcuminoids) (100 grams) $20/4 ounces. I bought an all-in capsule maker (allincapsule.com/) I’ve bought a Size 000 (which holds about 700mg curcumin) machine and capsules. I also have a size 1 capsule maker which holds about 250mg which I use for ALA. I take my 720mg 2-3x per day with food + pepper (as in on a tomato) and or w/ a Bioperine to increase absorption. Bioperine = Amazon Carlyle Bioperine 10mg, $9 for 120 capsules.

I no longer take aspirin because I’m 74 and increased risk of gut/bleeding issues. Ask your doc.

Metformin’s great, again ask your doc. Metformin can push a senior towards sarcopenia and it blunts muscle hypertrophy. Still, I take 1 gram / day, I work out 4-5x/week (40 minutes zone II cardio + one hour either upper or lower body, and I’ve gained muscle. But beware, or perhaps, be aware. If he’s new to Metformin SR or ER (sustained or extended) IR = on the toilet for many.

Apricot kernels = nope. Nope. And yes, I’ve researched it. I’m open to any quality evidence-based research, but until I find it, nope. It is fascinating, but it is dangerous, see: Rapid Death Associated with Laetrile Ingestion. jamanetwork.com/journals/ja...

Consider ALA, Alpha lipoic acid, Melatonin, Pterostilbene (I just ordered Amazon Potent Trans-Pterostilbene - 200mg, 180 Vegan Capsules, $22/180 capsules. I’ll “ease” into eventually taking 3x day. Consider NAC N-Acetyl-Cysteine, I fill my 000 capsules and have about 450mg/capsule and I take 3-4 a day. Amazon PURE ORIGINAL INGREDIENTS NAC N-Acetyl L-Cysteine Powder - $37 for one POUND...

None is proven to “kill,” cancer. Yes, increase apoptosis which is “killing,” but of you kill 10 cells a day but the cancer creates 20—what have you done.

All the above have proof, either in vitro and/or in vivo to hinder cancers ability, especially the ability to move to distant sites and connect to the circulatory system (read mets). I think they are worth it. Stick with one with zero to low toxicity, and as always check with your docs (who, sadly may stare at you saying…what’s [fill in the blanks]

I really enjoy my all-in pill creator, I love it. But if you go that route, look at videos on youtube. And you must follow the directions step-wise. Many downvote it, but all those who do, simply are too lazy to follow the directions. But with that route often you can get higher quality supplements at 25 to 60% less cost.

Feel free to PM me.

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