2013 diagnosed Proton Therapy and Seeds
21015
Cryotherapy at MD Anderson and Lupron
2016
2017 Provenge
2017 PSA rising
2018 Xtandi
Now doing supplements and Apricot seeds
Modified Citrus Pectin, AHCC, I P6, Curcumin, and a few other supplements.
Scans in August 5, 2019 scans all negative and PSA 0.00
Sounds like the Xtandi is working so it makes sense to continue that. I'd stay away from apricot seeds as they are poisonous and have not proven to be useful for cancer treatment:
If I understand right, you are still on Xtandi and are considering discontinuing it and continuing with just supplements and Lupron? or are you thinking to discontinue lupron as well and take an "ADT holiday"?
How long have you been on Xtandi for? What is your reasoning for stopping Xtandi, is a quality of life issue?
Also, please be careful with the apricot kernels, I know someone who almost died from cyanide poisoning taking them. The gut bacteria can release the cyanide leading to poisening and, depending on your gut bacteria and the strength of the kernel, you could be more or less susceptible. This person was taking 15 per day over several days and then began to have acute symptoms of cyanide poisoning, for which there is no antidote.
Wondering about stopping xtandi but won’t for now. Yes quality of life. Back off the Apricot seeds to three a day.
Sounds like you have a good handle on this. Don't stop any thing.
Also following some of the things in Jan’s book: How To Starve Cancer.
Hi Tom, we are also implementing some off label med use and supplements and used this paper to help determine what pathways to target since prostate cancer metabolism is quite different from many other cancers: ncbi.nlm.nih.gov/pubmed/286.... At some point, if we believe it is helping I'll post more.
Apricot seeds = cyanide
None of those supplements have good evidence, Xtandi does.
Also, be careful about taking substances that may interfere with the PSA test:
Stage 4 3 years ago, on Xtandi since finishing chemo. Have to think it’s the reason I’m still here. PSA 0.05
Gleason 9 in 2012
Spine and rib mets
Lymph involvement
21 chemos
2 sessions of cryoablasion
Failed Zytiga
Xtandi and Lupron for 30 months now
No active mets
Zero PSA
Progression free survival
Stay with xtandi
Life on hormone therapy is brutal but there are ways to mitigate the issues and I’m here for my family.
Thanks
PSA teating or wait it out?
Enzalutamide (Xtandi) or not
Decision Xtandi or radiation
