My husband has been battling PC for 10 years. He's done cryotherapy because it has already spread to the pelvic wall when discovered. Gleason score is 10. Did radiation and hormone therapy for several years till he became resistant. Cancer clogged ureters so stents were added. Left kidney no longer functions. Right kidney has poor function. Then treated with taxotere with prednisone and xgeva injections then treated with cabazitaxel and finally xtandi while still getting xgeva injections monthly. The xtandi seemed to be working well - brought his PSA down to .80 but suddenly he had difficulty walking. One day he needed a cane. 2 days later a walker. 3 days later he can't get out of bed. After some physical therapy he can move his legs and stand briefly to get on a commode but it's very difficult and that's all he can do. I fear that soon I won't be able to get him up at all. I can't get him in a car so no ability to get tests. He has decided to quit taking xtandi and all other treatments and hospice is coming to the house to assist. Since his PSA was so low I'm confused about how much cancer is actually active and how long he may survive and we are unable to get any imaging tests. It's just too painful for him to move. Has anyone else had a similar experience? Can anyone shed any light on approximate survival? Months? A year? This just started a month ago (Thanksgiving week).
He barely eats, is very weak, is shaky and twitchy but drinks a ton of water and seems fairly alert when drugs wear off. I'm lost.