Hi, my name is Sallie and I am new to the forum. My father (63 years old) was diagnosed two years ago with S4 Pca. PSA was 12, and after 8 months of radiation and hormone therapy, it has dropped below 1. The doctors advised us that the cancer wasn't gone, but it was at a managable state and we would just have to keep an eye on it. That was in April 2016. A month later he began complaining of severe back pain- all of his doctors, oncologist included, advised him that it was likely a result of stress and he should take OTC pain meds and get a massage. In July 2016, he called me one night in severe pain and I had an ambulance go pick him up to take him into the hospital. When they were ready to release him from the ER, he was unable to move/feel his body from the chest down. After scans were done, they diagnosed his cancer metastatic with mets on his spinal cord and ribcage, causing spinal cord compression and the paralysis. They did emergency intense radiation, and he spent over 5+ months in three different hospitals. His compression was relieved, and he has recently regained slight movement in his feet and feelings throughout his body.
In February this year, his PSA had jumped from 3 (when he was residing in the hospital on Xtandi, Xgeva and Lupron injections) to 8. They stopped the Xtandi and prescribed him Zytiga (+ Prednisone) in it's place since the PSA kept rising. He had been seemingly doing better and even participating in intense physical therapy to help with mobility increase. However, in May his PSA was up to 39. He was scheduled to do full body scans to reevaluate his condition two weeks ago, but was hospitalized after a UTI and severe chest pains. They did a chest CT and from that alone could tell that the mets in his chest had grown and a few had popped in his lungs as well. Needless to say, it was heartbreaking news.
Since the oncologist suggested that the only available option left was chemotherapy, and he refuses to do chemo, he has stopped all of the cancer fighting drugs/injections. It's been almost a week since he has stopped them and he is on at home hospice for pain management and sever nausea.
Sorry for the long winded back story, but my mom and I are looking into alternative options. He had been doing small doses of CBD oil, but we are looking into increasing this and adding any other natural fighters to keep him around as long as we can. Does anybody have any positive experience from natural treatments?
Thanks in advance for sharing.
Sallie xox
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daughter of stage iv patient here 
